← Return to Burning mouth syndrome – anyone else have this?
DiscussionBurning mouth syndrome – anyone else have this?
Skin Health | Last Active: Sep 14 2:15pm | Replies (79)Comment receiving replies
Replies to "@diannesmcneill , Thank you for your response on Burning Mouth Syndrome. Dayna"
Connect

@mouthburning Dayna I recently had shingles in Dec 2025. Then in Jan 2026 I came down with postcshingle nerve deep within my right ear and on right side of chin and face. I was given pregabalin for the pain and hydrocone-act. We figured out that hydrocone-act was making the pain worse so I stopped the pain pills. I have had 5 nerve blocks for the pain. I did not want to take pregabalin but that’s what I was offered. The 5th nerve block did not dull the pain. I also picked up burningmouth again from what they first flushed the IV with. 4 weeks later I was still dealing with the burning mouth again plus the post shingle nerve pain. I decided to start down dosing pregabalin to get off it. I was takig 100 mg3 times a day. Now I am on one 50 mg twice daily of pregabalin and I have noticed the burningtongue and mouth getting so much better on this dosage. It’s such a relief. I will continue down dosing until I am off pregabalin. I hope to never take pregabalin again ever!