Hi John, I too have been diagnosed with SFPN, and also have only stiffness, though it has spread from the balls of my feet to the entire bottoms of my feet. Have you found anything that has helped your condition?
Thanks,
Dave

Hi Dave (@dmarano2000), I have found something that I've had some success with. It's a protocol of over the counter vitamins and supplements that I take daily that work together to repair damaged nerves. When I first started taking them I had numbness from my toes up to just below the knees in both legs. After about 2 months the numbness was receding and it feels to be just above the ankles. It was September 2016 I started taking them and noticed results gradually until December of last year. I'm still taking the protocol but I haven't made any additional progress. If that's my new normal, I'm OK with it because it means at least it's not getting any worse like it was before I started on the protocol. My neurologist had told me it would continue to get worse gradually until it affected some motor/sensory nerves affecting internal organs. I can't guarantee it will work for anyone else but it has helped me and quite a few others in the group that I found it through. That said, it's one of those things that you have to do your own research and use your own best judgement as there are a lot of companies and products making money off people with neuropathy. I absolutely hate taking medications so it was an easy call for me since I don't have pain with it. Unlike my polymyalgia rheumatica (PMR) which I'm on my second occurrence and trying to taper off of prednisone.

If you would like to know the details, I posted my story here and it has a link to the group where I found the protocol.
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=43#comment-65985
Hoping you find something that works for you too...

John

Hi John—-  

I’m an Iowa member of the Minnesota Neuropathy Association who wishes he could attend more of your meetings. And I would if it were not for the 

distance involved and the hindrance the neuropathy causes to any extensive driving.  Your experience with this problem resembles mine—only

numbness that has reached just below my knees.  I’m interested in what over the counter vitamins and supplements you take daily to achieve 

the success you’ve had.  Would you kindly send me a list of what these are.  Thanks.

Jim McCarl in Des Moines

Hi Jim (@jimmccarl),

I take a specific list of over the counter vitamins and supplements that I found through a closed Facebook group - Solutions to Peripheral Neuropathy Pain & Discomfort. I order through links to the products on Amazon.com on their website - http://solutions2pnpd.com/. Since the group is a 501c3 Amazon does give them a small percentage for each purchase which the group uses for their Help Another Member program setup to help members who can't afford it.

I would recommend checking out the website and the Facebook group where you can read members success stories. I would also recommend printing the list out and discussing it with your doctor or pharmacist to make sure there are no conflicts with any medications you are currently taking.

Jim, do you have a specific diagnosis for your neuropathy?

Hope this helps,

John

Hi John—-

Thanks for the information

Hi John—

Thanks for the information.  No, I have not had a specific diagnosis for my neuropathy but this is something I hope to accomplish

in the near future.  Before, the only response I have gotten from the neurologists (and there have been many) is “to attempt to

discover the cause can be very expensive and why do it if there is no means that we know of that can correct the condition.”

I currently have an appointment with one of the speakers at a meeting of the Minnesota Neuropathy Association meetings

that I understand goes a little further than this.  Hope so.

Jim 

Hi Jim (@jimmccarl), my diagnosis from a Mayo neurologist was idiopathic small fiber peripheral neuropathy and the neurologist thought it might be hereditary. Here's an easy to understand explanations of small fiber peripheral neuropathy by Matthew B. Jensen. Assistant Professor of Neurology, University of Wisconsin:
-- https://youtu.be/8nrv7lRvvwU

Keep asking questions and learn as much as you can about available treatments. Knowledge is power ☺ and it will help you better communicate with the doctors.

John