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Chronic Myeloid Leukemia (CML)

Blood Cancers & Disorders | Last Active: Jun 20 4:17pm | Replies (45)
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Profile picture for craighatescancer @craighatescancer

Diagnosed in January of 2019 with CML and have been taking Gleevec (Imatinib) to help keep things in check. Some side effects (but manageable) from the medication but it seems to be helping as my blood work results have improved and a recent bone biopsy showed improvement as well. For now I’m having blood work done every 2 months and a Dr consult every 4 months.

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Replies to "Diagnosed in January of 2019 with CML and have been taking Gleevec (Imatinib) to help keep..."
living | @living | Jan 11, 2021

Great to hear your having improvements with Gleevec. If you don’t mind me asking, what kind of side effects are you experiencing?

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billybee | @billybee | Jul 29, 2023

What is your current bcr reading and how often are you tested. I was diagnosed in December 2022 with a reading of 42% and I have been on imatinib.My current reading
is 0.3% and my doctor indicated that I would need to go on stronger meds to get a deeper response.

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bettymesler | @bettymesler | Jun 6 6:46am

@craighatescancer
Hello I was diagnosed with CML with the P190 oncogene in November of 2025. Currently treating with Bosulif 400 mg a day. I have some side effects but the medication seems to be working. My reticulocytes and lymphocytes are still elevated though? Anyone else using this medication? Or have the P190 gene?

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