Does Mayo Clinic offer any treatment for peripheral neuropathy?

Hello Lauren @laurenstedman, Mayo Clinic has some information on diagnosis and treatment for autonomic neuropathy but it sounds like you already have a diagnosis of peripheral neuropathy - https://www.mayoclinic.org/diseases-conditions/autonomic-neuropathy/diagnosis-treatment/drc-20369836.

You might find it helpful to scan through other discussions on autonomic neuropathy to learn what other members have shared - https://connect.mayoclinic.org/search/discussions/.

Have you discussed your question with a neurologist or had any additional testing for autonomic neuropathy?

I saw a Dr in the pain management clinic at the Jacksonville clinic. They were very attentive and allowed me to be an active participant in my therapy and medication choices.

Thank god, after a third spinal fusion surgery—my neuropathy is gone.

I wish you the best and will keep you in my thoughts and prayers.

Thanks for that info. I think I'm going to get an appt with them in Phoenix soon.

Hi John,
No testing for autonomic neuropathy. Hopefully that will happen at Mayo. I will check out the site you sent.
Thanks again!

@laurenstedman I live in Tucson Az , have Been told I have PND and PAD but I’m just wondering if u ever got firm diagnosis as far as what type of neuropathy u have and how to treat it. They basically have just given me Gabapentin and Pramipexole for the restless legs. I have had the PND/PAD for like 5 yrs. Had arteries cleaned out but symptoms persist

Hi…
I have had many surgeries chasing a horrible pain and have been told after all the surgeries that I have Superior Cluneal Nerve Entrapment… I am searching for a peripheral nerve surgeon who has knowledge of the cluneal nerve and knows how to repair it …

for the nerve sever

Regarding Mayo Clinic and Neuropathy: Has anyone been seen at Mayo Clinic regarding peripheral neuropathy?
I was put on a lengthy waiting list to be seen. According to the paper work that I received, the appointment timing at Mayo is to be there 5 - 7 business days. I would be interested in your experience. Thank you!

@mikead63, your question made me think of @laurenstedman, who started this discussion when she was also looking for answers about her peripheral neuropathy and considering an appointment at Mayo Clinic in Arizona.

@laurenstedman, if you’re still following along, did you end up pursuing an appointment at Mayo or take another path? It would be interesting to hear what you’ve learned since you first posted and what, if anything, has made a difference for you day to day.

@berthamincox, you were also hoping to hear how things turned out for Lauren. How are things going for you now?

@jlharsh - Thank you! It would be very helpful for me to make the decision whether to wait for a contact from Mayo or follow up with another clinic that may specialize in IPN. Having just been at Mayo Clinic in Rochester I was really impressed with my treatment for another medical problem. However I would love to know someone's experience who was seen at Mayo for IPN.

Hi Mike @mikead63, I have been dealing with neuropathy that started in my toes back sometime in my 40s and watched it progress into my feet and legs over the years. I don't have pain, just the numbness and some tingling and whenever I mentioned it to my PCPs over the years was always told they can test to tell me whether it's nerve damage but if I only have numbness there's not much they can do about it so I ignored it until my early 70s (2016) when I wanted to know what my diagnosis was.

My PCP is in a Mayo Family Clinic in southern Minnesota so I had them make an appointment with a neurologist at Rochester Mayo. After a nerve conduction test, labs and a physical exam, I was diagnosed with idiopathic small fiber peripheral neuropathy. He thought it was most likely hereditary for a cause. Then summed it up like all of my Mayo PCPs had done before - there aren't any medications for the numbness. That's when I found Mayo Clinic Connect to learn what others have shared. The neurologist did ask me if he could take a picture of my feet with his phone and use it in a neuropathy seminar he was attending. He said I had the typical hammertoes that a lot of neuropathy patients have. I am glad that I had the appointment with the neurologist to finally get a diagnosis but a little disappointed that it was idiopathic and the cause could not be determined. I also shared my neuropathy journey in another discussion here https://connect.mayoclinic.org/comment/310341/.

If you have pain with your neuropathy, I think it would be worth seeking help from Mayo.