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@jlharsh - Thank you! It would be very helpful for me to make the decision whether to wait for a contact from Mayo or follow up with another clinic that may specialize in IPN. Having just been at Mayo Clinic in Rochester I was really impressed with my treatment for another medical problem. However I would love to know someone's experience who was seen at Mayo for IPN.

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Replies to "@jlharsh - Thank you! It would be very helpful for me to make the decision whether..."

Hi Mike @mikead63, I have been dealing with neuropathy that started in my toes back sometime in my 40s and watched it progress into my feet and legs over the years. I don't have pain, just the numbness and some tingling and whenever I mentioned it to my PCPs over the years was always told they can test to tell me whether it's nerve damage but if I only have numbness there's not much they can do about it so I ignored it until my early 70s (2016) when I wanted to know what my diagnosis was.

My PCP is in a Mayo Family Clinic in southern Minnesota so I had them make an appointment with a neurologist at Rochester Mayo. After a nerve conduction test, labs and a physical exam, I was diagnosed with idiopathic small fiber peripheral neuropathy. He thought it was most likely hereditary for a cause. Then summed it up like all of my Mayo PCPs had done before - there aren't any medications for the numbness. That's when I found Mayo Clinic Connect to learn what others have shared. The neurologist did ask me if he could take a picture of my feet with his phone and use it in a neuropathy seminar he was attending. He said I had the typical hammertoes that a lot of neuropathy patients have. I am glad that I had the appointment with the neurologist to finally get a diagnosis but a little disappointed that it was idiopathic and the cause could not be determined. I also shared my neuropathy journey in another discussion here https://connect.mayoclinic.org/comment/310341/.

If you have pain with your neuropathy, I think it would be worth seeking help from Mayo.