Hello @sucante. I'm rolling up my sleeves. 🙂
Welcome to Mayo Clinic Connect community. Here you will meet other people who have "been there" and are here sharing their medical story and experiences. Our hope is that you find relations similar to your own and receive benefit from reading, sharing and knowing that future members will benefit from reading about your experience as well. I find the connect community to be real, helpful, open and honest, and just a great place for everyone.
Just recently I was wondering if starting a topic thread on anxiety, post cancer would be helpful to others? I have encountered multiple people that have talked about anxiety post cancer journey and what surprised me most, was that the majority of those people feel alone and as if they shouldn't be anxious. 3 month visits, 6 months visits, 1 year visits....all ridden with anxiety and fear around 3 weeks before heading to the clinic for tests. How does a cancer survivor cope and deal with these feelings? I hope that others coming into this conversation will list what tips and tricks have helped them.
As far as the other concerns that you have mentioned here- I'm going to give you a few different group threads to check out and also some introductions to other members that will be helpful to reach out to.
Here is a link to the Diabetes group- https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/ Here you will meet members @twinskl @freemary @gman007 and @rosemarya (also a Transplant survivor) all whom have discussed chronic pancreatis as well as diabetes.
This link https://connect.mayoclinic.org/discussion/hashimotos-thyroiditis-229f9d/?utm_campaign=search will take you to the Endocrine group to discuss Hashimoto’s disease with fellow members @taterjoy @michellecrcrn @kyjeanne @dogmamat @sebley12 and @jillnc.
I'm also going to link the group Chronic pain here for you- https://connect.mayoclinic.org/discussion/welcome-please-introduce-yourself-welcome-to-the-new-chronic-pain-group-im/?pg=104#comment-71360
I hope this is a good start for you. Happy reading!
Hi Jamie. As a 9 year survivor of uterine sarcoma, I would definitely be interested in a group dealing with the many unknowns survivors face after treatment. I did not receive a plan of care after treatment, nor information about the late effects of treatment. I was simply told to follow up with my primary. I am currently relying on Mayo Clinic to address health conditions that are now popping up, as I found the general medical community doesn't appear to be able to address this issue.