Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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Hi, lilgrizz. Thanks for your note. I only have one little content, about the mega but crack. If you cannot laugh about your own scoliosis, just what is the point of having scoli in the first place? Just do like the politicians do. Tell the world you don’t have it, and it will be gone. Retroactively. Sorry.

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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Hello @lilgrizz, I would like to add my welcome to oldkarl’s.

Thank you for sharing your background with the other members of Connect. First, you don’t have have to apologize for getting off topic, as Connect is here for however you want to use it! Getting off topic can be therapeutic in itself isn’t it?

Here are some other discussions that you may want to check out based on some of the diagnoses you metnioned. Each discussion has many members for you to meet who will understand where you are coming from and what you are experiencing. Just click on the links below to check them out:

– Multiple Sclerosis (MS) – please introduce yourself, https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/
– Scoliosis, Introduce yourself and meet others, https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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Hi Lilgrizz, i’m no longer on that much pain medicine but when I was I was given a long acting Oxycodone, it’s called
Xtampza. It’s similar to the one you said you were using that they took off the market. I don’t think they’ve taken Xtampza off the market yet. It will probably be next,hope not!

Welcome to Connect and I hope that that medication can help you. It did me when I needed it. Jennifer

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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I’m sorry that you’re having to deal with so many health issues at once. I talked with the neurologist the other day, and we discussed how seemingly unrelated problems can be related – or unrelated. I’m trying right now to figure out what meds are helping, which ones, if any, I don’t need, which ones I might need to increase and what to do about the things that still need to be addressed. I agree with you that, in today’s climate, it’s become even more of a challenge. It used to be true that what a doctor told me 20 years ago, that no one needs to be in pain because if one med doesn’t work, there are others that will. It doesn’t seem to be that cut and dried anymore. I hope that it’s true for you, @lilgrizz.

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i do have chronic pain but i also have ptsd. what happened to that group? i cannot find it. would someone please help me find it? thank you.

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@peach414144

i do have chronic pain but i also have ptsd. what happened to that group? i cannot find it. would someone please help me find it? thank you.

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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thanks so much for the kind welcome and info. i’m definitely gonna check out the other groups because I can tell that sharing this info with you all is already helping my mental status. thank you so much.

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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@jenapower I’m not sure I’m doing these replies right and inserting the names. Jennifer thanks so much for the info. I’m definitely gonna ask the doc about it. Greatly appreciate it.

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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@jimhd you know what you say is so true. i’m also bipolar and it is sorda like a radar. right before I have a ms or lupus flare up I can guarantee you I will have a full blown manic episode. which means I end up in some kind of trouble, usually financial. You can catch me going thru every bodies couch cushions looking for loose change. And my ms med- Rebif- usually causes depression. I have to give myself a shot 3xweek and I have an opposite reaction to the med, not depression but mania. It seems I stay in trouble, broke and in pain. I guess I’m just a lil peeved that this big oxycodone crisis Trump is screaming about is hurting the people who are really in pain. I’m scared the day will soon come that they will cut us off too and we who suffer from chronic pain will just be screwed.

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I have fibromyalgia and have been on Lyrica for many years. I developed breathing issues so have stopped taking Lyrica. I have gone through withdrawal symptoms that have been awful. Has anyone else had problems stopping Lyrica?

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@marilynsue

I have fibromyalgia and have been on Lyrica for many years. I developed breathing issues so have stopped taking Lyrica. I have gone through withdrawal symptoms that have been awful. Has anyone else had problems stopping Lyrica?

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Hello @marilynsue, welcome to Mayo Connect – a great place to share your health concerns, ask questions and hear back from other Connect members on what they are doing for similar health concerns. I have no medical training or background but found some information on stopping Lyrica (pregabalin) on Mayo Clinic’s website here:
http://www.mayoclinic.org/drugs-supplements/pregabalin-oral-route/precautions/drg-20067411
Here’s an excerpt from the page – “Do not suddenly stop taking pregabalin without checking first with your doctor. Your doctor may want you to gradually reduce the amount you are taking before stopping it completely. Stopping the medicine suddenly may cause seizures or side effects such as dizziness, diarrhea, nausea, headaches, vomiting, irritability, trouble with sleeping, nightmares, or tingling feelings.”

Have you talked with your doctor on stopping Lyrica? Normally they have you taper off of the drug to let the body adjust. Hopefully other Connect members can join the discussion and share their experience.

John

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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@lilgrizz, Every time I take some more insulin or some tiny pill for something, I marvel at how fragile we humans really are. A drop or two if insulin to keep our whole body working close to normal, or even just a tiny aspirin. Years ago I took pills for something –I don’t remember what, maybe they were nitros, don’t know. Anyway I have had more dirt in a sweat pore, I think. Anyway, It does not take much to throw us off the straight and narrow.

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Hello, I’m Jeya and I had a heart attack and a stent put in 3 months ago. But this also brought my fibro and RA to the forefront and I having been suffering a great deal of pain. My recovery and rehab has been slower because of this, and it has been very frustrating for me. My doctor did increase my Lyrica to 300 and I’m feeling a little better. Wanted to have support and help. Thanks!

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@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I’m 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I’m just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i’m taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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Lilgrizz, you hit ‘reply’ under the response you want to talk to. It seems like you did it correctly.

I had a terrible fight with my insurance company getting them to cover Xtampza, but if you’ve tried all other options and give reasons why they don’t work, they eventually give in. It seemed to work well for me. I hope it’s a good answer for you.

I agree with whoever commented about the ‘Opiate Epidemic’, and where it leaves chronic pain patients. When the issue is discussed, we are never brought up. It is very scary!

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