Anyone had HALN for massive ADPKD kidney removal?
Even though the medical literature strongly advocates HALN for ADPKD kidneys up to 30 cm., I haven't yet found one surgeon willing to perform such on mine (at 27 cm.)?
Can anyone decrypt the disparity for me?
Interested in more discussions like this? Go to the Transplants Support Group.
Connect

@gzr63 Was set for surgery 05/05/26 but had accident on electric scooter! Surgery cancelled! Meanwhile, back home recovering, doximityGPT says "NO!" to bilateral nephrectomy when RKF~800 ml./day!
Now, 09/04/26 down from 800 to 550 ml/day. Will seek unilateral nephrectomy if/when RKF drops to <200 ml/day and/or symptoms override risk of 10% major cardiac "event" (given age/comorbidities).
Best to all!
-
Like -
Helpful -
Hug
1 Reaction