Should I have the Spinal Cord Stimulator? Looking for reviews on this

Posted by denman55 @denman55, Jun 5, 2023

I have had chronic lower back pain due to lumbar spinal stenosis for over 10-years. I have had multiple therapies and procedures done - including RFA, Epidural steroid injections, a MILD procedure, acupuncture, OT/PT and Chiropractics, as well as an Interspinous spacer and nothing has helped my pain. After all of that, the physician I saw in March's only recommendation was for me to have the Spinal cord stimulator, but I am actually afraid of this and have read that there have been numerous injuries as a result of this implant, and after reviewing the booklet and watching the video I initially felt that it was just to restrictive in terms of how you could move your body. If you have had this procedure please let me know your results. Many thanks.

Interested in more discussions like this? Go to the Spine Health Support Group.

Yes I’ve seen pain management doctor. Tests haven’t shown that procedures like that would help.

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Profile picture for tbeck23 @tbeck23

Does anyone have knowledge of the brand of spinal cord stimulator they’d recommend? 15 years after failed spinal fusion, and with all other options exhausted, I’m scheduled for the spinal cord stimulator trial. My doctors at Mayo Clinic are suggesting Medtronic or Nevro brands. Does anyone have experience with either and can give me pros and cons of each? Pros I found for each: Medtronic can adapt to your body movement and make pain adjustments; Nevro because it doesn’t vibrate for pain relief. They both are mri compatible which is necessary. It’s a tough decision so any advice is welcome!

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@tbeck23 I had one put in for the trial after 4 back surgeries it did absolutely nothing at all , Google the reviews you'll see what I mean

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Profile picture for Lisa Lucier, Moderator @lisalucier

@tbeck23 - I moved your message here so you could join with others talking about spinal cord stimulators for the last 3 or so years:

- Should I have the Spinal Cord Stimulator? Looking for reviews on this https://connect.mayoclinic.org/discussion/should-i-have-the-spinal-cord-stimulator-looking-for-reviews-on-this/

Fellow members @dkpffdp @heisenberg34 @jlssurplus and others here may have some thoughts on spinal cord stimulators of various brands they have tried or that a loved one tried.

Are you leaning toward one SCS over the other right now?

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@lisalucier I am looking to have a trial of the new Medtronic's SCS. The one I had implanted back in 2018 worked very well until it had some problems with the paddle lead. I am hoping that this model will also work well.

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@denman55 I had a Medtronic SCS implanted back in 2018. I worked great until it developed some issues with the paddle lead. Then it stopped working. I am trying to get a trial of their new model.

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Profile picture for gilvernon @gilvernon

Are you seeing a Mayo pain management Doc? Regardless investigate the BVN aka Intracept procedure. Mayo recommended this for me and my particular condition before a spinal cord stimulator….it work!!

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@gilvernon What symptoms/conditions were you experiencing prior to having the intracept procedure done?

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@denman55 You could do a trial of a SCS. It will give you an idea of just how well it will help your pain. Mine worked great. Dropped my pain from a 7 down to a 2. I could pretty much do anything that I could do prior to my injury. However, you should not overdue things.

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Only you can decide if it's worth the risk. What does your pain doc say about whether it's right for you or is this a last desperate attempt to try something and hope it works? You have to be very careful during the trial period not to do anything that might change the position of the electrode or whatever the probe is called. The same regimen would need to be followed for 6 weeks if you have it implanted.

GL if you choose to have one.

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Profile picture for heisenberg34 @heisenberg34

@gilvernon What symptoms/conditions were you experiencing prior to having the intracept procedure done?

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@heisenberg34 I had S1-L5 herniations, three surgeries. Radio frequency ablation outside the vertabrae. Many injections. My pain doc in St. Paul recommended spinal cord stimulation. I saw Mayo pain Doc for second opinion. Based on a careful review of my MRI and my end plates in particular he recommended the BVN which ablates nerves inside you end plates which are full of nerves. Here is what Google says about it: "Basivertebral nerve ablation (often called the Intracept Procedure) is a minimally invasive, outpatient treatment that uses radiofrequency heat to disable the basivertebral nerve inside the spinal bone,"

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Profile picture for gilvernon @gilvernon

@heisenberg34 I had S1-L5 herniations, three surgeries. Radio frequency ablation outside the vertabrae. Many injections. My pain doc in St. Paul recommended spinal cord stimulation. I saw Mayo pain Doc for second opinion. Based on a careful review of my MRI and my end plates in particular he recommended the BVN which ablates nerves inside you end plates which are full of nerves. Here is what Google says about it: "Basivertebral nerve ablation (often called the Intracept Procedure) is a minimally invasive, outpatient treatment that uses radiofrequency heat to disable the basivertebral nerve inside the spinal bone,"

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@gilvernon Are you going ahead with that procedure? Please keep us updated.

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If anyone out there has had the Intracept procedure done, please share your experience. Thanks.

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