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24 Hr PH test for GERD - question for those who have had this done
MAC & Bronchiectasis | Last Active: Oct 10, 2017 | Replies (113)Comment receiving replies
Yes, I had that in Tulsa. It's a little bit more difficult than just the normal impedence. They did it first -- and then followed it with the 24 hour tubing. At Mayo's they just did the regular impedence but they did have my results of the manometry and they didn't consider doing it over. You will be fine. Where I was in Tulsa the tubing for the manometry was a little larger and felt a little bit harder to do but the nurse doing it had it done to herself every year just so she could remember each thing to tell the patient and she was very good. It is a smaller hospital than where you will be going and probably the equipment where you'll be will be newer. So...... be sure and let me know how you felt after you do it. You'll at least be glad you did and I hope they are able to do as Mayo's did with the overnight impedence and will be able to correlate any problem with reflux. I'll be anxious to know.
Replies to "Yes, I had that in Tulsa. It's a little bit more difficult than just the normal..."
Barbie46....l agree with everything Jenablalock has written to you. 71 by the way is "young" for two reasons...
AARP divided old age into 3 categories...
-65 to 75 young old age
-75-85 middle age old age
-85- old
I am about to be 73......my mother died at 101 and 7 months.....so l am hopeful l have years to go....and l want to be able to do what l want to do during future years. Hence l will continue to try to find answers.......and be thankful l am not restricted by insurance.....which is an important variable to health issues as we know.
the tests l have been thru really are not that bad.....l will ask the GI doctor in a few weeks about the confirmatory tests for GERD which Jenablalock just had and described and will not look forward to...but to be thorough ...l will go thru them.
being able to go thru MRI"s which l did for a hip issue assures me l can get thru anything (claustrophobic in MRI machines)
also...watching the PBS Ken Burn's special on Vietnam War and hearing about what the POW's went thru assures me l can get thru tests after their experiences)
tdrell
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Hello All, your comments & experiences continue to help me try to find my way along this path!
After going to a local pulmonologist & ID dr's, I went to Mayo (Rochester) where I was put on the "Big Three", supposedly for 14 months. I did fine with Zithromax and Rifampin, but reacted dramatically to Ethambutol. (Intermittent stabbing pains in skull, wavy & unfocused vision) on my 2nd dose. My new local ID Dr. at the University of KY sent me to an opthalmologist, who told me about one of his patients (whom he thought was overdosed) going permanent blind.
The ID doc at the university has subsequently taken me off ALL MAC meds for the next 2 months until I see her again. She says that many folks find the treatment to be more damaging than the disease. (BTW, I've been told I have mild bronchiecstasis.)
Pretty much have decided I will decline taking Ethambutol unless someone can convince me it's truly necessary!
SO confusing bouncing from doctor to doctor this summer, all of whom have differing opinions.
I am an active 59 year old who exercises regularly. I don't cough very much (& cannot produce much mucous), have mild fatigue & Mayo doc says my immune system is good. Bronchoscopy showed MAC in lower right lung (confirmed by lab at Jewish National) & various nodules in both lungs. Only other fungus that tested positive is histoplasmosis, which is very common in the Southeast.
It is so hard whether to treat or simply monitor this!! Any tips appreciated.