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Bad stomach and meds

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 8 3:00pm | Replies (14)

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Profile picture for Dianna @holly1275

I had a Septical Myectomy 20 months ago I tried Camzyos, I tried every cardiac medications they didn't work some people can take medication and it works for them yes I did take medications daily but for me they made me sick.
After much thought and Hypertrophic Cardiomyopathy was getting worse, I chose a Septical Myectomy it was my only choice.
What went wrong was I was very limited on what hospital my insurance would pay.
I thought I chose well, but there is a difference a hospital that has only done a few to a hospital who have done thousands.
I tell everyone now call ask questions don't settle for less get more than one opinion it's your life your Journey.
Go to a hospital of Excellence don't make the mistake I did.
I finally found a Surgion at a hospital of Excellence, but unfortunately communication has been a problem.
I had a redo Septical Myectomy in my case the worse pain I have ever felt and feel awful.
I can't take medication for me this is my problem so I am struggling..

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Replies to "I had a Septical Myectomy 20 months ago I tried Camzyos, I tried every cardiac medications..."

@holly1275 Thank you for sharing and passing along your wise advice. Have you called the HCM Association? As I wrote before, they may have suggestions we are unaware of. You and I and many others can write volumes on insurance inequality....