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Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 8 3:00pm | Replies (14)
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@holly1275 a little confused. Did you have a septical because you can’t take meds or had to have it done anyway. I am in the early stages of all this. You take meds only when you need them. Are you referring to hcm meds. My dr said I can’t do that. They have to be taken every day. I am sorry you are in such pain now. Sometimes the cure is worse than the disease or meds and side effects. Take care.
Replies to "@holly1275 a little confused. Did you have a septical because you can’t take meds or had..."
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I had a Septical Myectomy 20 months ago I tried Camzyos, I tried every cardiac medications they didn't work some people can take medication and it works for them yes I did take medications daily but for me they made me sick.
After much thought and Hypertrophic Cardiomyopathy was getting worse, I chose a Septical Myectomy it was my only choice.
What went wrong was I was very limited on what hospital my insurance would pay.
I thought I chose well, but there is a difference a hospital that has only done a few to a hospital who have done thousands.
I tell everyone now call ask questions don't settle for less get more than one opinion it's your life your Journey.
Go to a hospital of Excellence don't make the mistake I did.
I finally found a Surgion at a hospital of Excellence, but unfortunately communication has been a problem.
I had a redo Septical Myectomy in my case the worse pain I have ever felt and feel awful.
I can't take medication for me this is my problem so I am struggling..