Does anyone else have pancreatic cancer mets to their stomach?

@marymichaels check into a celiac plexus block. It is done by an interventional radiologist. It is an injection that numbs the nerves in the stomach and reduces pain and lasts for 3-6 months. Ask your oncologist.

I am so very sorry about the pain your husband is experiencing. Have you looked into HIPEC for the mets in the stomach? I know Mayo Clinic has a current trial for HIPEC. https://www.mayo.edu/research/clinical-trials/tests-procedures/hyperthermic-intraperitoneal-chemotherapy-(hipec)

I have a friend who is currently at Mayo in Rochester for her first surgery and scans for the trial. I hope you are able to find some options and pain relief for our husband.

@kmbori When was your Husband diagnosed ? Has he had Chemo ? My husband is also all bones. We have 3 Sons and it has been so hard on the entire Family. My husband was always
a big, strong man and took so much pride in being strong.

@suelannon
My husband was diagnosed Jan of this year. He completed 12 rounds of folfirinox but the tumors in his stomach grew - the tumor on his pancreas stayed the same. He is retired military - he was so strong and solid muscle. Now he is just bones. I can literally feel all his bones - it completely breaks my heart and soul. We have a 17 year old son who is trying to stay strong for his dad. We are still waiting to receive the daraxonrasib. Its been 4 weeks since it was ordered. Does your husband have pancreatic cancer? what stage? Im so sorry you and your family are going thru this. Its horrible!!

@kmbori Yes, My husband was diagnosed in July 2024 . He had surgery and they removed the Body and Tail of the Pancreas and 20 lymph nodes . Cancer was in 14 of the lymph nodes. They also did x-rays of his lungs and then a biopsy and confirmed it was in his lungs also. He had so many complications from the Surgery ( Abscesses with tubes for 6 Months, a Collapsed Lung and Pneumonia. He never really recovered from the Surgery so the Oncologist would not put him on Chemo. She said it would kill him. Cancer is now in his stomach and most probably in his Liver. It has been a little over two years and like your Husband, my Husband was big and strong. He now looks like a skeleton with skin covering him. It has been so hard to watch all of this and my Sons are having a really hard time dealing with it. My husband has
coached them all in Baseball and Soccer and taught them how to ski. He has been a hugh part of their lives. Unfortunately, we are now down to weeks. He stopped eating and drinking 3 days ago and is now just sleeping. Just trying to keep him as comfortable as possible.
I really hope that the Chemo works for your Husband and that he is able to put the weight
back on. I will keep him in my prayers.

@suelannon It isn't easy for anyone. But battling cancer has taught me some things about myself and people. One thing that I learned is that you fight for your life the way you lived it. During your husband's and your fight, you two still found a way to spend time with your sons and their families. That's what is really important to you folks. You two stuck together during this cancer battle. You fought together with everything that you have, because that's who you are. I am pretty sure that's how you lived your lives together too? He might not physically look the same, but he is the same man. He is the man that you were fortunate enough to spend 55 years with. I bet he feels the same way about you. I hope that you can find some peace in the fact that you two fought together with everything that you have, with your sons and families by your sides, the same way you lived. Please be proud of that. It's special.

Thank you for the kind words and prayers. I will take all of the help that I can get!!!

@kmbori I recommend that you go find a quiet place and cry. Personally, I have to let it out or it just gets worse. I also beat the crap out of my pillows sometimes while crying. I do them both until I am completely exhausted and out of breath. I need to get out all of the anger, frustration, and emotions. I always feel so much better, when I am done. Have you tried anything like that yet?

@tomrennie
Thank you. I def take some away time and cry it out here and there. In the beginning I couldnt stop crying - but now I just remove myself and get it out by myself so my husband doesnt have to see me. Punching the pillows is def a good idea as well. Thank you. I appreciate your words.

@suelannon
Im so very sorry to hear what is going on with your husband. You are all in my prayers. Ive wondered what the end looks like and what I should look out for. But I just figured it would be when he stopped eating all together. The weight loss is one of the hardest parts of this. Its a daily visual reminder of whats going on. So scary and sad how quickly things can change in our lives. I just keep praying for the best and researching and talking to people to see what they are doing to combat this. Sending hugs to you and your family.

@kmbori I have had a similar crying journey but from the patient's side of things. I think both patients and caregivers need to let everything out sometimes with a good cry. We are only human after all. You are welcome.