Talking Frankly about Living with Advanced Cancer

Are you living with advanced cancer (sometimes referred to as stage 4 or metastatic cancer)?
This discussion is a safe space where you can connect with others to talk about the realities of living with limited time. It's not easy to find people who understand what it is like. For many reasons, you may not feel comfortable talking about your thoughts and emotions with friends or family. Perhaps you are alone. Even if you are surrounded by people who support you, you may experience intense loneliness.

Connect is a place where honest conversation can safely take place. You can speak frankly and be heard without judgement. I invite you to share your reality facing death and living now.

Interested in more discussions like this? Go to the Cancer Support Group.

@leannn

@sundance6 Oh that's a great idea. Please do. I have to admit, I'm new at this (new thread, etc.) so I'd be happy for you to take the lead. lol

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I certainly encourage anyone to start a new discussion about pets or perhaps you'd like to join this one:
- What Pets Can Do: Health and Healing https://connect.mayoclinic.org/discussion/what-pets-can-do-health-and-healing/

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@hopeful33250

I'm glad that you posted this discussion, Colleen. As I've had three surgeries for neuroendocrine tumors, a rare form of cancer, I've found myself wanting to look positively at the future, but with a cautious-eye on the reality of three occurrences. While I keep active, and I volunteer, work and maintain friendships, the reality of cancer is always there. I find myself still searching for answers and still trying to live a normal life. It really is a different reality from my life prior to cancer.

I would love to hear from others who are living with this dilemma. How are you balancing the different feelings of optimism and the reality of a cancer diagnosis?

Teresa

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Living with cancer is definitely different than before. In October we discovered a melanoma on my back and that my prostate cancer was back and had metastasized to 4 other areas of the bone. I am 70 and had thought that I was in control of my life, as much as you can be, including a successful business career. We still own one business that we have had for 35 years and I am the president. I only say this because I never realized what the mental trauma could be when you realize this can kill you? I was definitely no longer the one in control of my body! I was lucky that when they removed the melanoma and also lymph nodes from my arm pit and the margins came back clean so at least for now we don't have that hanging over us. I have always been an optimist, so keep that in mind but I do realize all of us have a death sentence. We don't get out of this alive. That was an important concept for me to come to grips with. What is really important, if you can, remember that you are still alive and how you live the rest of your life is up to you. Live for the people who love you. I have a great wife of 45 years, a son and his family, my daughter and so many more who I love dearly. I plan on doing everything I can to make the rest of my life what I want it to be. Medicine is always advancing and new treatments may be out there. I could beat cancer or I could die from it down the road or in an accident this morning riding my bike for exercise. We just never know. So fight with the tools you have, make sure, if you can, that you do your best to live the best life you can based on what is important to you. I of course know every day that I have this cancer and it sucks but I am fighting it every day as well. If your doctor doesn't have more ideas don't be afraid to reach out to another clinic or doctor. The Mayo Clinic seems to be a really good option. As a final thought I had a customer years ago who was in his 80's and he had beat eight different forms or recurrences of cancer. He was a true role model of how to live your life.

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@safari1949

Living with cancer is definitely different than before. In October we discovered a melanoma on my back and that my prostate cancer was back and had metastasized to 4 other areas of the bone. I am 70 and had thought that I was in control of my life, as much as you can be, including a successful business career. We still own one business that we have had for 35 years and I am the president. I only say this because I never realized what the mental trauma could be when you realize this can kill you? I was definitely no longer the one in control of my body! I was lucky that when they removed the melanoma and also lymph nodes from my arm pit and the margins came back clean so at least for now we don't have that hanging over us. I have always been an optimist, so keep that in mind but I do realize all of us have a death sentence. We don't get out of this alive. That was an important concept for me to come to grips with. What is really important, if you can, remember that you are still alive and how you live the rest of your life is up to you. Live for the people who love you. I have a great wife of 45 years, a son and his family, my daughter and so many more who I love dearly. I plan on doing everything I can to make the rest of my life what I want it to be. Medicine is always advancing and new treatments may be out there. I could beat cancer or I could die from it down the road or in an accident this morning riding my bike for exercise. We just never know. So fight with the tools you have, make sure, if you can, that you do your best to live the best life you can based on what is important to you. I of course know every day that I have this cancer and it sucks but I am fighting it every day as well. If your doctor doesn't have more ideas don't be afraid to reach out to another clinic or doctor. The Mayo Clinic seems to be a really good option. As a final thought I had a customer years ago who was in his 80's and he had beat eight different forms or recurrences of cancer. He was a true role model of how to live your life.

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This is such a positive, hopeful posting @safari1949 . It really helps me think about what’s really important. I don’t have cancer, but I do have an autoimmune disease that has really changed my life. Reading this helps me to put it all in perspective. Thank you

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Hello @safari1949

I agree with @becsbuddy that the way you think about life is inspirational! As I have had three surgeries for a rare type of cancer, carcinoid cancer, I understand the value of your thoughts.

I like the way you model the behavior you have learned from others such as the customer you had who had many recurrences of cancer and kept living a positive life. Mirroring the positive attitudes of others is so important.

I agree with you when you say, "So fight with the tools you have..." I like to think that we all have a tool bag that we can put on when life gets tough. The tools in that bag can be physical attributes, spiritual beliefs and/or emotional strengths. As we pull them out when we face difficulties in life they really can help make our attitude as strong as possible!

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A very important tool should also be friends and sometimes family. At times we forget that there are people in our lives who do care for us and they don't see your problem as a burden but an opportunity to help, regardless of what you think. It can be difficult to ask for help but if it is offered don't push them away. Good luck with your cancer and remember cancer doesn't define who you are.

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@becsbuddy

This is such a positive, hopeful posting @safari1949 . It really helps me think about what’s really important. I don’t have cancer, but I do have an autoimmune disease that has really changed my life. Reading this helps me to put it all in perspective. Thank you

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That warms my heart and I'm glad! Merry Christmas!

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@safari1949

That warms my heart and I'm glad! Merry Christmas!

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I have had five cancer surgeries since 2012. My last was Dec 6th. I lost my right lung and it is now in my left lung. I feel extremely blessed to still be alive and to enjoy Christmas. I know that in a couple of years cancer will win. I have chondrosarcoma and it is very rare and there is no treatment for it. I enjoy each and every day. I am a very positive person. Cancer is what I have, not who I am. Don’t let it steal who you are and your joy. It may take my body some day but not my spirit. Be positive, be grateful, be you. Go live life. Merry Christmas

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@kathleenkin

I have had five cancer surgeries since 2012. My last was Dec 6th. I lost my right lung and it is now in my left lung. I feel extremely blessed to still be alive and to enjoy Christmas. I know that in a couple of years cancer will win. I have chondrosarcoma and it is very rare and there is no treatment for it. I enjoy each and every day. I am a very positive person. Cancer is what I have, not who I am. Don’t let it steal who you are and your joy. It may take my body some day but not my spirit. Be positive, be grateful, be you. Go live life. Merry Christmas

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Thank you so much, kathleenkin, for being a wonderful inspiration to all of us! Merry Christmas to you!!!

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@polkagal

Thank you so much, kathleenkin, for being a wonderful inspiration to all of us! Merry Christmas to you!!!

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Merry Christmas to you as well😘

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@dc4444

My 60-year-old sister has been diagnosed with pancreatic cancer stage 4 - metastasized to her liver. Currently on her 4th visit for chemotherapy at Harold Lever Cancer Center in Waterbury, CT.

For those with the same cancer:

1.) Has anyone tried alternative treatments such as oxygenation therapies and/or immune enhancement therapies (IV vitamin C) ?
- If so, what was your experience?
2.) Has anyone been to the Jacksonville Florida clinic and what was your experience?
3.) Any recommendations on approaches to this cancer?

Regards...Dan

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Dear Dan ,

My Dad was diagnosed with Pancreatic cancer stage III, 8 months ago .He has not yet tried any alternative treatment such those you mentioned. If you proceed with those , please share your experience.
Yes I think you should Find an oncologist that you trust and like and who is more familiar with pancreatic cancer. Also check radiotherapy. Stereotactic options might be helpful! I heard some very good results in some cases for stereotactic options. Regards Anastasia

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