Hood stoma stent

Posted by trach @trach, Apr 4 6:58am

Would like to connect with users of Hood stoma stent

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

Profile picture for trach @trach

Do you live near Ft. Wayne?

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@trach, yes, about 20 miles south!

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Profile picture for lizzieqmention @lizzieqmention

@thomason I completely understand! For me, it’s never sore when I take it out or put it back in, unless I have a cold and the area is already tender. I would describe it more as uncomfortable than painful. When I put mine in, I use a little jelly to help it slide in easier, and I lay down first so my neck muscles are relaxed. It makes a big difference for me. I definitely think the size could make a difference too. And yes, you really do learn something new every day!

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@lizzieqmention, you got me going! I may just get up the courage to try again! Right now, at age 67, I am suffering from a stubborn throat ulcer right where my tumor was approximately eight years ago. I do not drink or smoke...the only thing different was some chewy ginger candy I began eating about four months ago. It has been very painful. In a few days the ENT is going to scope me again to see if the sore has improved. If not, it's biopsy time!!! Yay!!! Eating most foods now is prohibited, even coffee, until this thing heals...IF it heals. Maybe when this ordeal is figured out, I will try the stent again. Thank you for the invaluable information. It is very helpful.

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Profile picture for trach @trach

Great. I made an appt. last April with the #1 rated laryngologist jn
Indiana ( a four month wait time). The day of the appt. last month we
recieved 5 inches of rain couldn't make it so had to cancel. In the interim
( last July) I went to Arizona for a week. Didn't have to take any meds. It
got to112 but was much more bearable than Indiana. Hope to relocate soon.

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@trach Wow, after waiting four months, I would’ve been so disappointed having to cancel! 😩 I’m glad you got to experience Arizona, though. 112° is crazy, but it’s interesting that you found it more bearable than the heat and humidity in Indiana. I hope you’re able to relocate soon! 🩷

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Profile picture for thomason @thomason

@lizzieqmention, you got me going! I may just get up the courage to try again! Right now, at age 67, I am suffering from a stubborn throat ulcer right where my tumor was approximately eight years ago. I do not drink or smoke...the only thing different was some chewy ginger candy I began eating about four months ago. It has been very painful. In a few days the ENT is going to scope me again to see if the sore has improved. If not, it's biopsy time!!! Yay!!! Eating most foods now is prohibited, even coffee, until this thing heals...IF it heals. Maybe when this ordeal is figured out, I will try the stent again. Thank you for the invaluable information. It is very helpful.

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@thomason Oh no, I’m so sorry you’re going through all of that. 🩷After everything you’ve already been through, I can imagine how stressful it must be to have to wait and see whether the ulcer heals or whether you’ll need a biopsy. I’m glad my experience was helpful, and I truly hope the ENT finds that it’s healing and you won’t need that biopsy! Please keep us posted, and when you’re ready, I’d be happy to help however I can with the stent🙏🏻🙏🏻🩷

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Profile picture for trach @trach

Make sure your ENT has a substantial amount of experience with the Hood
stoma stent system. The laryngologist that put mine in originally, retired
apprx.10 years ago. An ENT (with 34 yrs experience in his field) told me at
my last visit this past January that he had never seen a Hood Stoma Stent.
So there are not that many people that share our handicap. I am told there
are less than one person in a million that shares my particular condition.

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@trach, you are a rare one! It is good to know you! Thank you for the information, as it is very helpful. As soon as this stubborn throat ulcer heals, I will definitely try the stent again. As for me...I am not a rare one! In 2020, during radiation for a tumor of the Pyriform Sinus (located around the vocal cords) I developed severe Covid---had just received the "cure" (shot) too. On the table, with that head mask on, you are told not to move. The radiation beam goes around and does its precise thing---you know all this---so, no movement. That was so much fun, trying to hold back coughing with a severe illness. In the end, both vocal cords paralyzed/ It took over a year to get the voice and eating/drinking ability back. The feeding tube fell out after about 3 months and against doctors wishes, I refused to have it reinserted. Determined to eat because of a wonderful speech therapist (Dana, God bless you) it finally began happening. At an appointment one day, she brought me in a plate of some kind of Italian food. It was the best food I have ever tasted! Well, I have lost 12 pounds in the last month due to this ulcer. A CT scan showed it, and my ENT scoped me a month ago. He said it had a gray covering, which means it is trying to heal. Antibiotics, steroids...nothing is working. I go back to this doctor in a week. He said if it isn't healing, he wants to do a biopsy!!! YAY!!! It is located right where my tumor was. I do not smoke or drink and am a 67-year-old married woman. Yes, cooking steaks for hubby and canning hot peppers. At least I can still look!!! Sorry to go on and on. The only thing I did different was four months ago I began chewing ginger chewy candy. Maybe that irritated the spot. For some reason in my mind, I always thought the area radiated was scar tissue, not delicate. Yes, we learn as we go! If this ordeal is ever solved, I will try the stent again. Thank you for listening.

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Profile picture for thomason @thomason

@trach, yes, about 20 miles south!

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I live about 60 milesstraight west of you.

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Profile picture for thomason @thomason

@lizzieqmention, you got me going! I may just get up the courage to try again! Right now, at age 67, I am suffering from a stubborn throat ulcer right where my tumor was approximately eight years ago. I do not drink or smoke...the only thing different was some chewy ginger candy I began eating about four months ago. It has been very painful. In a few days the ENT is going to scope me again to see if the sore has improved. If not, it's biopsy time!!! Yay!!! Eating most foods now is prohibited, even coffee, until this thing heals...IF it heals. Maybe when this ordeal is figured out, I will try the stent again. Thank you for the invaluable information. It is very helpful.

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Good luck!

REPLY
Profile picture for thomason @thomason

@trach, you are a rare one! It is good to know you! Thank you for the information, as it is very helpful. As soon as this stubborn throat ulcer heals, I will definitely try the stent again. As for me...I am not a rare one! In 2020, during radiation for a tumor of the Pyriform Sinus (located around the vocal cords) I developed severe Covid---had just received the "cure" (shot) too. On the table, with that head mask on, you are told not to move. The radiation beam goes around and does its precise thing---you know all this---so, no movement. That was so much fun, trying to hold back coughing with a severe illness. In the end, both vocal cords paralyzed/ It took over a year to get the voice and eating/drinking ability back. The feeding tube fell out after about 3 months and against doctors wishes, I refused to have it reinserted. Determined to eat because of a wonderful speech therapist (Dana, God bless you) it finally began happening. At an appointment one day, she brought me in a plate of some kind of Italian food. It was the best food I have ever tasted! Well, I have lost 12 pounds in the last month due to this ulcer. A CT scan showed it, and my ENT scoped me a month ago. He said it had a gray covering, which means it is trying to heal. Antibiotics, steroids...nothing is working. I go back to this doctor in a week. He said if it isn't healing, he wants to do a biopsy!!! YAY!!! It is located right where my tumor was. I do not smoke or drink and am a 67-year-old married woman. Yes, cooking steaks for hubby and canning hot peppers. At least I can still look!!! Sorry to go on and on. The only thing I did different was four months ago I began chewing ginger chewy candy. Maybe that irritated the spot. For some reason in my mind, I always thought the area radiated was scar tissue, not delicate. Yes, we learn as we go! If this ordeal is ever solved, I will try the stent again. Thank you for listening.

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Keep us informed. Hope all goes better than expected!

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Profile picture for trach @trach

I live about 60 milesstraight west of you.

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@trach, you are over by Peru? Years ago, mom would drive us to Grissom to grocery shop or if we needed medical. Those are great memories. We used to eat at a restaurant called Curb Burger. The waitresses would bring the food to the car window on a tray. The hot, ham club was delicious! Yes, good memories.

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Profile picture for thomason @thomason

@trach, you are over by Peru? Years ago, mom would drive us to Grissom to grocery shop or if we needed medical. Those are great memories. We used to eat at a restaurant called Curb Burger. The waitresses would bring the food to the car window on a tray. The hot, ham club was delicious! Yes, good memories.

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I live in Rochester. My younger brother retired from Grissom a couple of
years ago.
He was Wing Commander for several years.
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