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Anyone taking Tagrisso for Lung Cancer?

Posted by babs1956 @babs1956, Jan 27, 2025

Is There anyone taking Tagrisso And feeling well on it. I’m taking 40 mg of Tagrisso I have a little bit of Dizziness. I was on 80 mg but I developed a lot of bruising on my legs so my doctor put me On 40 mg. Is this a good drug?

Thank you so much,
Barbara

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babs1956 | @babs1956 | Sep 1 11:47am
In reply to @eds611 "Thank you each and all for hugs and information. I have found and signed up for..." + (show)
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Thank you each and all for hugs and information. I have found and signed up for a talk by Chris Wark. What helps in waiting time for scan results? He has MRI coming in 2 weeks.
Fatigue and bruising are big issues. Bruising is a visible side effect which leads to unwanted questions. Hugs back and listening to music we like helps us. E

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@eds611 i’m so happy to hear you’re going to be speaking with Chris. I follow him all the time. He has a wonderful information.

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babs1956 | @babs1956 | Sep 1 11:55am
In reply to @eds611 "Thank you each and all for hugs and information. I have found and signed up for..." + (show)
Profile picture for eds611 @eds611

Thank you each and all for hugs and information. I have found and signed up for a talk by Chris Wark. What helps in waiting time for scan results? He has MRI coming in 2 weeks.
Fatigue and bruising are big issues. Bruising is a visible side effect which leads to unwanted questions. Hugs back and listening to music we like helps us. E

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@eds611 I also hope you let us know what Chris said. That would be a great conversation.

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Lisa, Volunteer Mentor | @lls8000 | Sep 1 1:08pm
In reply to @eds611 "@lls8000 It is my husband who has EGFR NSCLC. He was tested and started Tagrisso 12/25...." + (show)
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@lls8000 It is my husband who has EGFR NSCLC. He was tested and started Tagrisso 12/25. He has Stage IV with small brain Mets and bigger issues in his spine. Tagrisso may have ended brain issues, and has helped his back and lungs. Found by accident and we are still in shock. The psychological wound is great. He is a wonderful and private person and only our son and his family know. Thank you for your reply. E

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@eds611, The psychological weight of this type of diagnosis is heavy; for the patient and the families/friends. We face it and deal with it in unique ways. He'll figure out what is best for him, and that may change over time too. With Tagrisso showing positive results for him, I'm thankful that he has some time to figure out what it all means for him and your family.
I continued on with my 'regular' life for the first two years after my diagnosis, because I didn't know anything else. Once I started accepting the reality of everything that had happened, I was able to make some changes, focusing on what was most important to me and heathiest too. But it took a couple of years to get to that point. It takes time, and he's fortunate to have your support.
In the early days, I know my husband likely told more people than I did. It's not easy to talk about ourselves, and he needed to talk to someone other than me about it too. This type of diagnosis impacts you too. You can come here to talk and to ask questions. Do you have some support when you need it? Activities or people that can serve as a distraction, even if you aren't telling them about the cancer? How are you holding up?

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mamajite | @mamajite | Sep 1 1:46pm
In reply to @eds611 "Your news meant a lot to us! Scans coming. It’s a new world for us. Does..." + (show)
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Your news meant a lot to us! Scans coming. It’s a new world for us. Does anyone have advice re a healthy and helpful diet, based on real research? many thanks and stay well all!

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@eds611 eliminating dairy reduced the GI side effects from Tagrisso for me. like @babs1956 a plant based diet seems to work best overall. I still try to have some fresh fish occasionally. I was encouraged by my team to have salmon to help improve my skin/hair side effects. it was a bummer, but I also had to give up spicy food because I lost all tolerance for it. talking with a functional medicine doctor at my cancer center helped me with these sorts of issues/decisions. I wanted to see how I could best support my body during treatment - if that makes sense.

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babs1956 | @babs1956 | Sep 1 2:46pm
In reply to @mamajite "@eds611 eliminating dairy reduced the GI side effects from Tagrisso for me. like @babs1956 a plant..." + (show)
Profile picture for mamajite @mamajite

@eds611 eliminating dairy reduced the GI side effects from Tagrisso for me. like @babs1956 a plant based diet seems to work best overall. I still try to have some fresh fish occasionally. I was encouraged by my team to have salmon to help improve my skin/hair side effects. it was a bummer, but I also had to give up spicy food because I lost all tolerance for it. talking with a functional medicine doctor at my cancer center helped me with these sorts of issues/decisions. I wanted to see how I could best support my body during treatment - if that makes sense.

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@mamajite yes it does. It seems like you have a great team working with you.

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eds611 | @eds611 | Sep 1 4:44pm
In reply to @babs1956 "@eds611 I also hope you let us know what Chris said. That would be a great..." + (show)
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@eds611 I also hope you let us know what Chris said. That would be a great conversation.

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@babs1956
I am still learning how to use links, but I found 2 re Chris; I know nothing about him though.

Our own oncologist has only said avoid sugar. Many say eat cruciferous vegetables. Hope I will find the time to a hug to you with thanks.

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babs1956 | @babs1956 | Sep 1 8:02pm
In reply to @eds611 "@babs1956 I am still learning how to use links, but I found 2 re Chris; I..." + (show)
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@babs1956
I am still learning how to use links, but I found 2 re Chris; I know nothing about him though.

Our own oncologist has only said avoid sugar. Many say eat cruciferous vegetables. Hope I will find the time to a hug to you with thanks.

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@eds611 I understand. You already gave me a hug. Thank you so much.

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omalley9 | @omalley9 | Sep 7 1:56pm
In reply to @babs1956 "Hi Tinae, I too am taking Tagrisso, I’m also seeing a holistic doctor. She detox me..." + (show)
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Hi Tinae, I too am taking Tagrisso, I’m also seeing a holistic doctor. She detox me and I am juicing, carrots, ginger, lemon, and celery. Plus, I am taking vitamins. I feel really good. I’m glad you’re doing well too.

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@babs1956 I take Tagrisso also. I’ve been taking multivitamins and acquired b6 toxicity. Please be careful taking multivitamins.

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babs1956 | @babs1956 | Sep 7 2:55pm
In reply to @omalley9 "@babs1956 I take Tagrisso also. I’ve been taking multivitamins and acquired b6 toxicity. Please be careful..." + (show)
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@babs1956 I take Tagrisso also. I’ve been taking multivitamins and acquired b6 toxicity. Please be careful taking multivitamins.

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@omalley9 i’m so sorry to hear this. I’ve never taken multivitamins. I don’t like them. They repeat on me all the time. We just have to be more careful that that’s all.

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lala56 | @lala56 | Sep 8 3:26pm
In reply to @flusshund "@lala56, The three year recommendation is only for resected tumors in stages I to IIIa. For..." + (show)
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@lala56, The three year recommendation is only for resected tumors in stages I to IIIa. For the rest of us, the plan is to stay on Tagrisso until recurrence, progression, or intolerable side effects.

I was initially diagnosed at stage IIb and had an upper right lobectomy followed by chemo and radiation. About two years later it metastasized to my brain. Following brain surgery and radiation I began taking Tagrisso. I was cancer free for over three years until I had small recurrence in that same part of my brain. That was treated that with one more round of radiation. Unfortunately that led to brain necrosis. My doctors battled that for over a year before it started spreading rapidly and new tumors formed, again in the same area. Early this year I went to MD Anderson for another full open brain surgery. that was followed by 10 rounds of low level radiation to that region of my brain. since the cancer has never shown up anywhere else the decision was made to increase my dosage of to 160MG per day.

Now that you have some context, I'm doing fine. I just keep rolling with whatever life hands me. I'm still working full time at a job I love, and I keep in touch with friends and family.

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@flusshund Thank you for sharing your journey. You're right , we take each battle as it comes. It's amazing to hear what you have gone thru and sounding positive . It's a better alternative as one can easily think the opposite way. Hurry to your resilience and perseverance.
I've gone back to work too, helping out mainly . It helps with keeping my mind busy and engaged. All the best to you and keep up the fight. Warm hugs and prayers.

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