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Cabometyx side effects

Posted by lu7 @lu7, 1 day ago

Has anyone experienced severe abdominal pain with cabometyx? Did it improve with time or did you have to quit taking the drug? Thank you!

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Turkey, Volunteer Mentor | @tomrennie | 1 day ago

@lu7 Here is a link to how others experienced Cabometyx:
https://connect.mayoclinic.org/discussion/anyone-taking-cabometyx-1/
How long have you been taking it?

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lu7 | @lu7 | 1 day ago
In reply to @tomrennie "@lu7 Here is a link to how others experienced Cabometyx: https://connect.mayoclinic.org/discussion/anyone-taking-cabometyx-1/ How long have you been..." + (show)
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@lu7 Here is a link to how others experienced Cabometyx:
https://connect.mayoclinic.org/discussion/anyone-taking-cabometyx-1/
How long have you been taking it?

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@tomrennie 10 days. When I got sick they drew labs, my LFTs were up and Dr said to stop. Testing tomorrow to see if liver function is back to normal. I imagine starting again.

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mcharlesfrancis | @mcharlesfrancis | 16 hours ago

I would not wait to see whether severe abdominal pain simply gets better with time. Cabometyx carries a rare but serious risk of gastrointestinal perforation or fistula, and the manufacturer specifically tells patients to seek immediate medical attention for persistent or severe abdominal pain.

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Turkey, Volunteer Mentor | @tomrennie | 15 hours ago
In reply to @lu7 "@tomrennie 10 days. When I got sick they drew labs, my LFTs were up and Dr..." + (show)
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@tomrennie 10 days. When I got sick they drew labs, my LFTs were up and Dr said to stop. Testing tomorrow to see if liver function is back to normal. I imagine starting again.

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@lu7 Good luck today. Please let us know how it goes?

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lu7 | @lu7 | 15 hours ago
In reply to @mcharlesfrancis "I would not wait to see whether severe abdominal pain simply gets better with time. Cabometyx..." + (show)
Profile picture for mcharlesfrancis @mcharlesfrancis

I would not wait to see whether severe abdominal pain simply gets better with time. Cabometyx carries a rare but serious risk of gastrointestinal perforation or fistula, and the manufacturer specifically tells patients to seek immediate medical attention for persistent or severe abdominal pain.

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@mcharlesfrancis Thank you. I started with labs but eventually landed in the ER and got a CT scan. I expected to hear diverticulitis since I've had it before, but showed only mild colitis. The pain is subsiding very slowly after stopping the med. Not sure what's next.

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