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Anyone have severe abdominal pain with Cabometyx (cabozantinib)?
Neuroendocrine Tumors (NETs) | Last Active: Sep 10 9:33am | Replies (16)Comment receiving replies
I would not wait to see whether severe abdominal pain simply gets better with time. Cabometyx carries a rare but serious risk of gastrointestinal perforation or fistula, and the manufacturer specifically tells patients to seek immediate medical attention for persistent or severe abdominal pain.
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@mcharlesfrancis Thank you. I started with labs but eventually landed in the ER and got a CT scan. I expected to hear diverticulitis since I've had it before, but showed only mild colitis. The pain is subsiding very slowly after stopping the med. Not sure what's next.