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Sick of waiting
I am sick of waiting. All of this waiting for a disorder as old as human kind. I'm waiting and watching time and years of my life just fade away into non-existence. Every year I plan a vacation and then my body fully locking up , the pain, sensitivity to light, my skin ablaze , muscles and joints ceasing to work and the best they have for us is change your diet and sleep well. My life is ending more and more each day and there is nothing I can do about it. I want my life back and I need to hear new discoveries about this awful disorder . Can we get steps in the direction of a cure?? Anyone else feeling impatient too?
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Yes, I am impatient too.
Why is there so little being done to find a cure?
Is it because Fibro affects mostly women.
Is this why?
Or is it because the medical field still thinks Fibro doesn't exist?
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2 ReactionsIt's most annoying to be told, try this, try that. There's no way I am going to give up my coffee, I am already drinking mostly decaf and aren't I allowed ABIT of caffeine in my life as a morning treat. My mum bless her heart said I drink far too much coffee and so and so who also has fibromyalgia has only one cup a day and it has worked wonders.Someone had better find a cure for this fibromyalgia noose ASAP...People that mean well, relatives have no idea, I was even told not to say anything if I start to stutter my words...
Yes please find a cure ASAP, I just want to carry on eating what I like when I want, it's the only pleasure sometimes when in a bad fibromyalgia flare. If there was a cure we wouldn't have to deal with well meaning people saying this works, try that etc ... Yes our lives seem to be going in a direction we were not intending before fibromyalgia came long, so I am also impatient. I just want while waiting for a miracle cure to be left to muddle along in my own way and yes just allowed to be grumpy on bad days without having to apologise!.
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1 Reaction!! I hear you!! We’re all saying the same thing. And I’ve had it for 25 years. Please I’m gonna say this with a laugh, but also I mean it, take drugs. When you get to the pearly gates, Saint Peter is not just gonna say good job. You didn’t take any drugs. Nope he’s not gonna say that so take what you need. I take Savella, gabapentin, and started Tamaya. Now to go on vacation, which just started this last two years I told my doc I could not go on vacation due to the pain and that I wanted something extra to take during my vacation. So she gave me 10 pills of tramadol. So on vacation, I take one in the morning and one at night. I also make sure I have a hotel that looks out over something beautiful in case I’m the one sitting for the day or afternoon. She only gives me 50 mg which is not very much for an old person like me. . I also make sure I have a hotel that looks out over something beautiful in case I’m the one sitting for the day or afternoon. She only gives me 50 mg which is not very much for a old person like me. But it allows me to have a vacation. She is very reluctant like I’m going to become a drug at it because she only gives me 10 pills with no refill. So every time I go on vacation I have to ask for a refill. Anyway, that’s what’s working for me now. You’re not alone in this everybody on this site thinks the exact same thing.
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1 ReactionI hear you. If I had cancer pain I would get real pain medication. Just to take the edge off every now and then. I’ve always been reluctant to take drugs legal or otherwise. When I get medication from doctors for anything I can’t wait to try and get off them. But if you have fibromyalgia you can just suffer and be miserable. Fibromyalgia doesn’t kill you, as a matter of fact many live very long miserable lives from what I’ve seen. Every time one pain subsides I get a “hello “ from a new or a remake of an old pain that always feels worse than the last place I had pain in. It’s hard to believe more can’t be done or at least in my case a better medication discovered that doesn’t break your brain. I’m angry and grouchy because I’m in so much pain right now. I pray for us all.