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Tapering off prednisone with GCA temporal arteritis

Posted by jeanrod825 @jeanrod825, May 7, 2025

I was diagnosed In Oct 2024 when I lost partial vision in one eye. I was started on 80 mg prednisone. January went to 60 mg, February down to 40 and March down to 20. I have had some symptoms such as sore temporal area and slight headaches. Dr has dropped me to down 10 mg a day. I would like to know how everyone did when dropping to 10 and also what side effects of dropping prednisone to this amount. Can not wait to hopefully be off prednisone as effects are terrible .
Thanks for all the info.

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honeybun01 | @honeybun01 | 23 hours ago
In reply to @jeanrod825 "Thank you so much for your input. You are giving me hope that I will feel..." + (show)
Profile picture for jeanrod825 @jeanrod825

Thank you so much for your input. You are giving me hope that I will feel better as prednisone goes down. I have mentioned Actemra to my doctor but she does not feel like I need it. Told me if I start with symptoms to go back to 20 mg of prednisone. Do you feel like you have had any relapse since cutting back on prednisone? I am seeing a Neuro Ophthalmologist and she does not feel I need to see a rheumatologist.

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@jeanrod825 rheumatologist is the main doctor you need. Tapering is a key factor and they are the right doctor's for that.

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honeybun01 | @honeybun01 | 22 hours ago

I think your drop down is too much.Slow and low is better. I'm going to do 5 when they cut mine from 60.

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