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Long term medication Hydroxyurea

Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (73)

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Hello and welcome. I also have PV/JAK 2and diverticulitis. I’m 78 and have been on 1000 mg of HU daily for over 5 years. I take both capsules at night before bed as was suggested by my hematologist and that works out well for me.
I don’t have family but when I told my best friend it was rather a “Ho hum” reaction. That surprised me and made me feel bad but I got over it. There is not a lot of “press” for this condition and maybe that’s a good thing. But,I think the medical profession, in general, needs more info about it. My GP seemed panicked when he told me I needed to find a hematologist asap and wondered out loud if my moving to Arizona, and the heat, caused it!
While I don’t think it caused it, after reading as much as I have about it and reading some of the comments on this forum, I am convinced that heat aggravates it.
I’ve never been too bothered by the diverticulitis but I do “blame” a lot of my symptoms on age as much as I feel the PV and HU are the cause.

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Replies to "Hello and welcome. I also have PV/JAK 2and diverticulitis. I’m 78 and have been on 1000..."

Christina, thanks for mentioning diverticulitis! I'm 76 and find tomatoes are not my friends anymore. Finding rice and stir fry seem most compatible with the digestive system. On HU 500 daily four years now.