Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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oopsiedaisy | @oopsiedaisy | Apr 5 8:36am

I had a 31% gain in my lumbar spine after taking Evenity for 11 months. My T-score went from -2.2 to -1.5. I get my last shot this Friday. I also did about five months of Tymlos followed by generic Forteo before starting Evenity. I did have some side effects from Evenity: joint pain in my hips and knees and weight gain. It was worth it for the results for me. Everyone is different.

joelaurie1 | @joelaurie1 | Apr 5 8:36am

In reply to @patwerthman "@joelaurie1 Do you have changed Dexa numbers?" + (show)

@patwerthman -Yes

pam52 | @pam52 | Apr 6 8:24pm

@oopsiedaisy
After you finish the Evenity, does your doctor want you to follow it up with Prolia? It seems so many on this forum have been prescribed Prolia. I wonder if that is necessary?

thank you
pam 52

nartisticgold | @nartisticgold | Jun 19 5:20pm

In reply to @marianne1358 "Thank you Giannam. Please keep me posted on which course you go. I have to continue..." + (show)

I am dealing with those exact symptoms and it has exacerbated my seasonal allergies 10 fold. Was in the hospital overnight, where they found a heart murmur that I never had before but the drs dismissed my connecting all this to Evenity

oopsiedaisy | @oopsiedaisy | Jun 19 5:36pm

In reply to @pam52 "@oopsiedaisy After you finish the Evenity, does your doctor want you to follow it up with..." + (show)

@pam52 Sorry, I missed your question back in April. I followed up with Reclast and had my first infusion yesterday. It went well.

dianat | @dianat | Jun 20 11:00am

I am on Evenity. I finish in November. No side effects. I will be curious to see if my scores improve. I am leaning towards Reclast or Forteo afterwards. Need to have a conversation with my doctor. New doctor as my current one left the practice....ugh

nermar1 | @nermar1 | Aug 30 12:28pm

In reply to @janglenniesmith68 "I’ve just had my 4th Evenity “infusion”. It’s 2 walloping shots each time, but I’m tolerating..." + (show)

@janglenniesmith68 Where can I find your update now that your year is over? Thanks!

nermar1 | @nermar1 | Aug 30 12:31pm

In reply to @windyshores "@connibar I used Radius Assist for Tymlos. I filled a form out that is online at..." + (show)

@windyshores I'm ready didn't comments of yours and not in chronological order or with the same post. Did you take anabolic drugs before starting Evenity? Or were you never on Evenity? After the anabolic drugs what did you take next?

janglenniesmith68 | @janglenniesmith68 | Aug 30 1:23pm

In reply to @nermar1 "@janglenniesmith68 Where can I find your update now that your year is over? Thanks!" + (show)

@nermar1
Hello! I’m doing so well. 2nd year of reclast, last infusion will be in the new year. I’ve needed a strong back as I’ve been full time carer for my beloved husband, it’s taken all the strength and stamina I could muster. I will always feel a debt of gratitude for the science. I hope your story is positive and wish you all the best.