Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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oopsiedaisy | @oopsiedaisy | Apr 5 8:36am

I had a 31% gain in my lumbar spine after taking Evenity for 11 months. My T-score went from -2.2 to -1.5. I get my last shot this Friday. I also did about five months of Tymlos followed by generic Forteo before starting Evenity. I did have some side effects from Evenity: joint pain in my hips and knees and weight gain. It was worth it for the results for me. Everyone is different.

joelaurie1 | @joelaurie1 | Apr 5 8:36am

In reply to @patwerthman "@joelaurie1 Do you have changed Dexa numbers?" + (show)

@patwerthman -Yes

pam52 | @pam52 | Apr 6 8:24pm

@oopsiedaisy
After you finish the Evenity, does your doctor want you to follow it up with Prolia? It seems so many on this forum have been prescribed Prolia. I wonder if that is necessary?

thank you
pam 52

nartisticgold | @nartisticgold | 19 hours ago

In reply to @marianne1358 "Thank you Giannam. Please keep me posted on which course you go. I have to continue..." + (show)

I am dealing with those exact symptoms and it has exacerbated my seasonal allergies 10 fold. Was in the hospital overnight, where they found a heart murmur that I never had before but the drs dismissed my connecting all this to Evenity

oopsiedaisy | @oopsiedaisy | 19 hours ago

In reply to @pam52 "@oopsiedaisy After you finish the Evenity, does your doctor want you to follow it up with..." + (show)

@pam52 Sorry, I missed your question back in April. I followed up with Reclast and had my first infusion yesterday. It went well.

dianat | @dianat | 2 hours ago

I am on Evenity. I finish in November. No side effects. I will be curious to see if my scores improve. I am leaning towards Reclast or Forteo afterwards. Need to have a conversation with my doctor. New doctor as my current one left the practice....ugh