Things just got worse. Diagnosis is now acute leukemia (AML)

@twitt1949
This is a journey none of us expected. I opened Mayo, saw your post and that Lori already replied. It goes without saying that we are real people and not bots. Real experience, though seldom the same. When I had my bone marrow transplant in April of 2024 I did not research and google dive. I listened to my City of Hope team and this site. Lori was there as soon as i posted.
I go back to my watch and wait moment. October 2023. I had in the two years prior went through significant treatment for breast cancer with genetic mutations to boot. Lynparza was a pill i took that has a side effect of possible MDS. I had Brca 2 and an undefined at the time mutation found. Once i had my BMB, the TP53 gene was found to be mutated.
The head Radiology oncologist doctor had told me in early 2022, that the radiation being prescribed would likely not work on me. I have a cancer 2% of the population has he said. All in all, it may help my chance of recurrence about 2%. Possible side effects from the radiation could be lifelong. He explained all about why it is done and the expectations of how it will work. Lastly, he said, if you were my family, I would not recommend you do it. There are other treatments out there that your City of Hope oncology team will look at.

My what if was my hematology oncology doctor saying my MDS was low-med. I could wait for 3 months and take another blood test. And I could choose to be in the "Be a Match" program which would match me up with a donor. By December, i had a number of matches and one that was a 10/10 match.
I had my 1-month follow-up yesterday to receive my 2nd MMR vaccine. The CMA administering it is a nursing student at the college that i work at.
My NP was back after 6 months off for her baby. The oncology doctor gave her 40 minutes with me. Within just a few she said she was surprised i had a 2nd blood clot, and my ankle today looked swollen and i was not wearing my compression stocking. What. She asked me how i knew. I said my ankle was still swollen just like the first time. She mentioned people like me who have multiple clots often stay on Eliquis for the long term.
I filled her in on my sister, family and all going on. I had beautiful blood numbers with nothing out of sync. Glucose is a bit high, but she said that can be from what you ate the last few days. We will check it in 2 months.
I will have my yearly CT scan on my lungs to make sure anything noted before is stable or gone. I will not worry. I truly feel good. Besides some neuropathy and brittle nails, all is good for today.