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Hemochromatosis and MGUS
Very, very confusing I have hemochromatosis which holds iron in your body and could be toxic, but I also have MGUS Which makes you anemic my RCD is low which means I need to get iron. Will that affect my hemochromatosis be as confused? I keep infections. I stay sick. It’s affected every part of my body. Does anybody else have this?
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Just curious. What led to your MGUS diagnosis? What are your M-Spike and kappa lambda free light chain levels?
How often do you have bloodwork done for your MGUS?
MGUS doesn’t cause anemia. Is there a chance you have progressed beyond MGUS to SMM or MM?
2021 all of a sudden I know where I had kidney stones like crazy so they took them out and I went in for a month check up and I had more that they came out and after that, my leg started doing a throbbing things in the thighs and all of a sudden I lost complete control of my legs. I was not able to stay in walk or do anything for two years as in a wheelchair. I gotta drop Foot even and I built this strength back up in my legs and got them working again and then something started in my stomach and I had it stomach infection for like eight months and I could not eat they put me on in the hospital on antibiotics constant for five days and I got through that and then my eyes started. I got something called wet, molecular degeneration, and my right eye actually ruptured so they’re doing all these blood test along and I seen the doctor for hemochromatosis which is aren’t overload so I have a good family Dr he’s been around for a while so he’s testing me for a lot of things and he’s only found the MGS. He sent me a camper Dr cause it’s easier to say a month later the pike it went up I started getting sick again and right now what’s going on is it’s very difficult to see. Got something in my digestive system causes a severe virus infection they could lead into sepsis and I was told even when they clear that up, it’ll come back and so right now I’ve got infection in the eyes, the intestines and the blood. It’s all been doing some bloodwork and I get it tested sometimes every other month because I got so much going on the levels. I can’t keep track of them cause they change so much but they all say normal so it’s all I can take it. There comes to town when you just got to accept what’s going on and I guess that’s what I’m doing. It doesn’t make it easier, but you accept it.