Connect
Optimism
Dealing with Idiopathic P Neuropathy is not easy. It’s a mystery to me and my neurologist how why my pain flared up so much in the last six months given my PN had no symptoms for so many years. I was diagnosed with it 30 yrs ago. Does anyone have examples of individuals who’s condition got much better for unknown reasons. I believe somewhat in the mind body connection and it is so important to remain optimistic and hearing positive stories can really help.
Like
Helpful
HugInterested in more discussions like this? Go to the Neuropathy Support Group.
Connect
Excellent topic, friends27 (@friends27). Mine is large-fiber PN, so the balance is poor, but there's no pain. I'm unable to report a remission of symptoms, but I am able to report minimal progression (worsening), thanks to lot of PT. Even though I can't say that I'm getting better, I do regard my situation with optimism––and I lookforward to reading what other responses you get to this topic. ––Cheers! Ray (@ray666)
-
Like -
Helpful -
Hug
5 ReactionsYou should check and look up on the website for CIDP - Chronic Inflammatory Demmilonating Polyneuropathy
Which is what they thought I had to begin with. On their site people have said it can come and go. Anyways they’re a great group and maybe they can help. ❤️
-
Like -
Helpful -
Hug
2 ReactionsI believe that optimism goes a long way in helping one deal with neuropathy and autoimmune conditions. It certainly is not a death sentence. And, I do note that when under stress, neuropathy seems more prevalent or at least, noticeable. There are times when I hardly feel the neuropathy in my feet. Last night, I was focused on some stressful issues in my life, and voila, the neuropathy felt more pronounced. Weather and other environmental conditions may also play a role. If we could train our brains and emotions to be more optimistic, we could perhaps alleviate our conditions to the point where they don't seem to exist.
-
Like -
Helpful -
Hug
2 ReactionsNeuropathy is a living hell. There are literally no words to describe its toll. My neuropathy really kicked in about 1 month after my Folfirinox Chemotherapy ended. The process and impact of neuropathy is utterly debilitating mentally and physically. I have tried everything, including vitamins, epileptum, lyrica , peptides ara 290 . Nothing even remotely reduces the symptoms. If there is anything positive it would be great to hear.
-
Like -
Helpful -
Hug
1 Reaction@stangreen I have read that the pain pump was originally designed to help people coming off chemotherapy. Have you considered a trial? It is a fairly non-invasive procedure.
@arcuri24
Your comments seem very insightful, especially what you wrote about training our brain and emotions to be more optimistic. I think in the worlds of P.T. and other disciplines, that is referred to as neuroplasticity, and it has definitely been proven to improve conditions for which it has been applied. In addition (and in no way trying to suggest a cure or even a treatment), it has been my experience that a normal dopamine level in the brain also influences mood, attention span and motivation - all a part of an optimistic outlook.
Thanks for the great thought to ponder!