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Neuropathy | Last Active: 1 hour ago | Replies (8)

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Profile picture for stangreen @stangreen

Neuropathy is a living hell. There are literally no words to describe its toll. My neuropathy really kicked in about 1 month after my Folfirinox Chemotherapy ended. The process and impact of neuropathy is utterly debilitating mentally and physically. I have tried everything, including vitamins, epileptum, lyrica , peptides ara 290 . Nothing even remotely reduces the symptoms. If there is anything positive it would be great to hear.

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Replies to "Neuropathy is a living hell. There are literally no words to describe its toll. My neuropathy..."

@stangreen I have read that the pain pump was originally designed to help people coming off chemotherapy. Have you considered a trial? It is a fairly non-invasive procedure.

@stangreen google and read about new medicine being developed by Winsantor for peripheral neuropathy including that caused by chemo. They have completed phase 2 trial and this was shown to regenerate nerves in feet and lower legs. It is not just for pain. They plan to make it available through Montana's new expanded Right to Try hopefully by end of this year.