I recently had surgery to remove NET in small intestine

Posted by hans051275 @hans051275, Feb 12, 2025

They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver pathology came back clear. What concerns me is 7 out of 20 lymph nodes came back positive and they are telling me there is no treatment. They said high reoccurence and to just do scans and lab work every 6 months. Is this true no treatment just wait for reoccurence???
--Well-differentiated neuroendocrine tumor, grade 2.Tumor is 1.8 cm in greatest dimension.
Lymphvascular invasion is identified.
Perineural invasion is identified.
Number of lymph nodes examined: 20.
Number of lymph nodes involved: 7.
Maximum size of metastasis (glass slide measurement): 4 mm

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

No symptoms at all. Still recovering from surgery. The sitting around not knowing what's next is my issue. My PET scan after surgery showed nothing. I'm thankful for that.

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I saw the Oncologist a few days ago and all I can do now is sit and wait. Next scan in December. I have jitters but am learning to deal with it. I have had many sleepless nights thinking about the what if, second guessing etc.
What quiets the jitters? Knowing God has this and the outcome will be positive.

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