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DiscussionI recently had surgery to remove NET in small intestine
Neuroendocrine Tumors (NETs) | Last Active: 5 hours ago | Replies (62)Comment receiving replies
Replies to "@jerrydanhuffman Wow ... I have daughters but so far they haven't intervened on my behalf. They..."
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@dadcue
I quit smoking on the first day in the ER and haven't smoked a single cigarette in 17 months. I will endeavor to continue that success, all the time being aware of how fragile a situation that is. Thank you for your lack of being judgmental. While in the hospitals I always asked physicians to find something wrong with me that wasn't attributed to having smoked cigarettes. They did. NET.
I had a Foley catheter for 4 months - a long time. I never inserted one and when the urologist advised me to remove it myself, I was quite reluctant but did so. I have taken tamsulosin (Flomax) since almost the first day in the ER. Two nights ago, I slept for 9-1/2 hours without having to get up for urination. That is a record, but it is now routinely between 4-6 hours between nightly voiding. When I first started lanreotide injections, it was every hour. That doesn't make for restful sleep. I still see a urologist, but only at 6-month intervals.
My children think I need help crossing the street, but I maintain my lawn mowing, edging, trimming and gardening myself, even in the 100 + degree weather we've been having. I am very ambulatory, do not require assistance and still am able to drive safely, although I don't enjoy it like I did when younger. I recently sold my Ducati motorcycle and do not want another one.
I have always been a rather modest person, and the first catheter insertion was equally as embarrassing to me as having to wear diapers as an adult for the first time. One quickly learns to leave modesty behind, as I have been able to do with catheters and diapers.