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Does anyone have short bowel syndrome?
5 years ago I had a small intestines blockage and had to have all but 2 feet of my small intestines removed. I was on TPN and a feeding tube for a couple years years now I am eat food. I am able to eat most foods except raw vegetables and high fiber foods.
Over two years ago I started having constant abdominal spasms and constant nausea, doctors don't know what is causing it. The spasms feels like someone is twisting my insides and some pressure. Nausea medications don't help with the nausea.
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Don't know what to do. My GI doctor isn't treating my ileus and he isn't treating my Short Bowel Syndrome symptoms. My GI doctor wants to still treat my Short Bowel Syndrome as IBS, I don't have IBS. Doctors want to also say that it's psychological however it is not psychological, it is medical issues that are not being treated in a medical way. Treating my Short Bowel Syndrome as IBS makes my Short Bowel Syndrome worse. GI doctor wants to refer me to a pain doctor to see about getting a spinal cord stimulater,however from research about short bowel syndrome a spinal cord stimulater can make short bowel syndrome worse. My GI doctors doesn't specialize in Short Bowel Syndrome. So I continue to suffer all the time with constant upper left abdominal pain. What can I take to help with constant abdominal pain? Not related to food. Doesn't change with bowel movements. Walking and moving around doesn't change my abdominal pain. Pushing on my abdomen doesn't change my abdominal pain. Pain is different than what it was a couple years ago. I am not having spasms, it is constant abdominal pain.
I have an appointment with my GI doctor in a couple days. Hope he has some ideas this time, the last couple GI doctor visits didn't help me at all. But this GI doctor doesn't specialize in Short Bowel Syndrome. My health issues are getting worse. Family members don't understand my health issues so they don't think that I need to see a specialist for my Short Bowel Syndrome.
My GI doctor doesn't know what to do for my constant upper left abdominal pain. So I continue to suffer all the time. Still not being treated for my constant abdominal pain. GI doctor wants to say it's psychological however my constant upper left abdominal pain is a medical issue that isn't being treated medically. My doctors in Missoula, MT don't understand Short Bowel Syndrome.
Pain doctor wants to try trigger point injections for my upper left abdominal pain. Don't know if they will help because my abdominal pain isn't abdominal wall pain or muscle pain. My abdominal pain is deep inside abdominal pain. Not related to food or bowel movements. Moving around doesn't change my abdominal pain. I continue to have constant upper left abdominal pain.
@tjanet - have you isolated where the deep inside pain is coming from (e.g., a certain organ)? How much would you say this pain is getting in the way of your daily life?
@lisalucier
Spleen or intestines. It's getting harder to do daily activities. But it doesn't effect me walking or moving around. Eating doesn't seem to make things worse or better. Having bowel movements doesn't change my pain level. Could also be from dehydration.
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1 ReactionHad trigger point injections in my abdomen yesterday, but it didn't help my abdominal pain at all. My abdominal pain is deep inside constant abdominal pain not muscle pain. Moving around doesn't change my abdominal pain. Eating doesn't change my abdominal pain.Having bowel movements don't change my abdominal pain.Putting ice/heat on my abdomen doesn't help my abdominal pain.
Doctors want to continue to treat my abdominal pain as muscle pain or IBS. My abdominal pain isn't muscle pain and I don't have IBS. So my doctors are misdiagnosing my constant upper left abdominal pain.
Constant upper left abdominal pain at a pain level of 6 out of 10. With a high pain tolerance.