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Has anyone not used medication after First Dexa scan spine -2.8?

Posted by rmasters @rmasters, Aug 15 6:05am

I am 57, 5'2" and 110 pounds and have just had my first DEXA scan spinal -2.8 osteoporosis, femoral neck and hips -1.3. I exercise and eat well. I did go through surgical menopuase at 50. I have a blocked LAD artery and use injections of repatha for this. I am giving all these details because I really don't want to start any of these medications and wondering if anyone has ignored pressure from doctors, all of mine are encouraging Reclast. I am scared and tired of looking at all the pros and cons of everything. thank you in advance

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gravity3 | @gravity3 | 1 day ago
In reply to @rn40 "@ou14mejc my experience personally and having read about the medications, is that OP meds do a..." + (show)
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@ou14mejc my experience personally and having read about the medications, is that OP meds do a much better job in improving bone density numbers in the spine as compared to the hips. I took Evenity for one year with good improvement in my spine, but hardly any improvement in my hips, where my numbers are in the -3 range. I am currently not taking any medications. I leave open the possibility, but really fear the side effects, and haven't found a palatable option among the medications. The good news, is that I experienced very little in the way of side effects with Evenity

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@rn40

Are you saying that you didn't have a follow-up drug to keep any of your gains? Are you able to track that with bone markers or doesn't your endocrinologist do that. Mine does not and it is quite irritating...darn!

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ou14mejc | @ou14mejc | 1 day ago
In reply to @rn40 "@ou14mejc my experience personally and having read about the medications, is that OP meds do a..." + (show)
Profile picture for rn40 @rn40

@ou14mejc my experience personally and having read about the medications, is that OP meds do a much better job in improving bone density numbers in the spine as compared to the hips. I took Evenity for one year with good improvement in my spine, but hardly any improvement in my hips, where my numbers are in the -3 range. I am currently not taking any medications. I leave open the possibility, but really fear the side effects, and haven't found a palatable option among the medications. The good news, is that I experienced very little in the way of side effects with Evenity

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@rn40 I suppose the medications must affect people differently. I had severe numbers in my spine and the latest DEXA had improved to -1.3. I had taken the Forteo shot almost two years prior to this DEXA. On the other hand, my hips did not improve that much and were -2.9. I have been told that Forteo targets the spine and Evenity targets the hips. I have only had 3 injections, so time will tell if my hips improve. So, I guess my point is, that different people must get different results according to body makeup.

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rn40 | @rn40 | 1 day ago
In reply to @gravity3 "@rn40 Are you saying that you didn't have a follow-up drug to keep any of your..." + (show)
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@rn40

Are you saying that you didn't have a follow-up drug to keep any of your gains? Are you able to track that with bone markers or doesn't your endocrinologist do that. Mine does not and it is quite irritating...darn!

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@gravity3 i did not have a follow up drug. I was not given good information at the time. I was told I would need to take Prolia, for life, and once I started could not stop due to the increased risk of vertebral fracture. If I knew I could take just one dose, I would have done that. But as I indicated, my worst numbers are in my hips, and I did not get improvement in my hips,

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gravity3 | @gravity3 | 1 day ago
In reply to @rn40 "@gravity3 i did not have a follow up drug. I was not given good information at..." + (show)
Profile picture for rn40 @rn40

@gravity3 i did not have a follow up drug. I was not given good information at the time. I was told I would need to take Prolia, for life, and once I started could not stop due to the increased risk of vertebral fracture. If I knew I could take just one dose, I would have done that. But as I indicated, my worst numbers are in my hips, and I did not get improvement in my hips,

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@rn40

I am sorry you did not receive better information

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WilWeten | @wilweten | 1 day ago
In reply to @rn40 "@gravity3 i did not have a follow up drug. I was not given good information at..." + (show)
Profile picture for rn40 @rn40

@gravity3 i did not have a follow up drug. I was not given good information at the time. I was told I would need to take Prolia, for life, and once I started could not stop due to the increased risk of vertebral fracture. If I knew I could take just one dose, I would have done that. But as I indicated, my worst numbers are in my hips, and I did not get improvement in my hips,

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@rn40 Without Reclast or another bisphosphonate within a month after finishing your course, you'll lose practically all the gains of Evenity within a year!

If you need a link to research on this, I'll find it for you.

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