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Anyone with mast cell activation syndrome (MCAS) and MPN/MDS overlap?

Posted by evelynkuhlman1 @evelynkuhlman1, Jul 12 5:43am

Anyone with mast cell activation syndrome (MCAS) and MPN/MDS overlap?

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evelynkuhlman1 | @evelynkuhlman1 | 1 day ago

Yes. I have both as well as erythromelalgia and small fiber neuropathy. No fun

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pixiesusan | @pixiesusan | 4 hours ago

I have a pre-MDS called CCUS. I also have MCAS. Between the 2 I'm exhausted, have bone pain (I'm taking Xolair for hives) and itchy. 🙁

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