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@triciaot Thank you for your reply, it’s nice to know that your friend’s daughter made a good adjustment, a few days at a time worked well for her. How is your sister doing ?
I am also in the process of seeing a lawyer to have our middle son who lives near us appointed a Co-guardian so that if something happened to my husband and I at the same time, he would not go through the court system to get guardianship. There’s a lot to think about when you get older. We already have a will with a Special Needs trust in place.

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Replies to "@triciaot Thank you for your reply, it’s nice to know that your friend’s daughter made a..."

@emyliander My sister is doing well! I have power of attorney for financial and healthcare, but not guardianship. Technically she can make her own decisions, but really she does not handle any big issues. My nephew also has legal documentation to take over as POA when I no longer can do it. There is a trust in my mother’s name that my sister is sole beneficiary that I oversee. The hope is that it lasts!!

There is a lot to think about! Its good that you will have the legal work done for your son to help out if needed. My older brother had been managing my sister’s care but was diagnosed with stage 4 lung cancer last year so we transitioned her care to me. That was a lot of work!