Who is managing your bone health, oncologist or endocrinologist?

Posted by Zebra @californiazebra, Aug 16 12:49am

I’m a breast cancer patient on Letrozole for 5.5 years so far and 10 year goal. 2 years ago I had osteopenia and my oncologist wanted to put me on Zometa, but said ask your endocrinologist. My endocrinologist said no, he would do Prolia first and only when I have osteoporosis because Medicare won’t cover for osteopenia. So I haven’t been on anything. I’m reading that Medicare will cover those drugs for AI drug induced osteopenia (true?) and that oncologists choose Zometa for breast cancer as protection from cancer spreading to bones (true?). I feel like the two specialists need to talk so I get the appropriate treatment. Oncologist just told me to have my endocrinologist order DEXA that is due and manage my bone health. Endocrinologist says he can order but it won’t be covered since he has no history on that for me. I feel like a ping pong ball so I’m wondering who is managing bone health for other breast cancer/AI patients. Thanks for any input.

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Profile picture for brightlight66 @brightlight66

@carklo Thank you for sharing! May I ask what kind of breast cancer you were diagnosed with? I also came into my cancer journey with osteoporosis and have been taking Anastrozole with Verzenio for about a year as I was diagnosed with Invasive Lobular Carcinoma 2B and my oncologist feels that I'm high risk.
Due to weight training, wearing a weighted vest, jump training, AlgaeCal and a clean protein forward diet, I improved my osteoporosis numbers by 2%. I refuse the osteoporosis meds, and so far the strength training has been a huge help. My goal is to reverse the osteoporosis to osteopenia in 2 years.
The Anastrozole causes Trigger Fingers, so I only take it 3X/week as I'm tiny...105lbs and 5'2". I'm determined to maintain bone mass and am SO happy you are not on any medications. I can't wait to be off them.

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@brightlight66 Your post is very encouraging to me. May I ask how old you are? I'm almost 83 and a little over 2 years out from DCIS breast cancer. I had a lumpectomy with clear margins and clear lymph nodes. I've been on Anastrazole for the 2 years after finishing radiation treatments and really feel like it's aging me! What really caught my interest about your comments is that you are doing AlgaeCal and your osteoporosis numbers have improved. I've recently learned about AlgeCal products and have been doing lots of research about it. I had a baseline dexa-scan after my radiation completed (which showed osteopenia) and am due for the 2 year follow-up scan in Oct. I've already made up my mind that if I'm into osteoporosis I'm not going to do any drug treatment and want to do natural ways of increasing my bone density. My husband and I walk almost every day for 45 minutes using walking poles for extra upper-body workout. I already do Calcium, Vit D, and magnesium but think I'll definitely consider doing AlgaeCal after the dexa scan results are in since it's only a couple months away. Thanks for your encouraging comments.

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Profile picture for sam44 @sam44

@brightlight66 Your post is very encouraging to me. May I ask how old you are? I'm almost 83 and a little over 2 years out from DCIS breast cancer. I had a lumpectomy with clear margins and clear lymph nodes. I've been on Anastrazole for the 2 years after finishing radiation treatments and really feel like it's aging me! What really caught my interest about your comments is that you are doing AlgaeCal and your osteoporosis numbers have improved. I've recently learned about AlgeCal products and have been doing lots of research about it. I had a baseline dexa-scan after my radiation completed (which showed osteopenia) and am due for the 2 year follow-up scan in Oct. I've already made up my mind that if I'm into osteoporosis I'm not going to do any drug treatment and want to do natural ways of increasing my bone density. My husband and I walk almost every day for 45 minutes using walking poles for extra upper-body workout. I already do Calcium, Vit D, and magnesium but think I'll definitely consider doing AlgaeCal after the dexa scan results are in since it's only a couple months away. Thanks for your encouraging comments.

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@sam44 Hi there! I'm 67 and have only been on Anastrozole for one year, but I'm over here fighting osteoporosis with everything I can find. I take AlgaeCal Plus. It's sold alone or as a package with a Strontium Boost which I do not take because I tried it and it caused diarrhea. So I only buy AlgaeCal Plus from Amazon, and you're supposed to take 2 capsules twice per day. For all of last year, I only took it ONCE a day and my Dexa numbers improved. So after this last Dexa just a few weeks ago, I ordered more AlgaeCal Plus and now take it twice a day. I support you in not doing drug treatment as my understanding is once you start, you have to stay on them. Best wishes to you, we're all in this fight together. Power on my friend!!!

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Profile picture for brightlight66 @brightlight66

@sam44 Hi there! I'm 67 and have only been on Anastrozole for one year, but I'm over here fighting osteoporosis with everything I can find. I take AlgaeCal Plus. It's sold alone or as a package with a Strontium Boost which I do not take because I tried it and it caused diarrhea. So I only buy AlgaeCal Plus from Amazon, and you're supposed to take 2 capsules twice per day. For all of last year, I only took it ONCE a day and my Dexa numbers improved. So after this last Dexa just a few weeks ago, I ordered more AlgaeCal Plus and now take it twice a day. I support you in not doing drug treatment as my understanding is once you start, you have to stay on them. Best wishes to you, we're all in this fight together. Power on my friend!!!

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@brightlight66 thanks for your quick response. I'm sorry to hear the Strontium Boost gave you diarrhea. Sure hope that doesn't happen for me as I want to start doing the AlgaeCal Boost after my dexa scan. I agree, we're in this fight together! I'm a retired nurse who used to pass out drugs to my hospital patients all the time and now the older I get, the more anti drug I'm becoming! My greatest reliance is in God and the natural products He's provided for us. Blessings!

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Yes indeed about God, blessings and the natural products! I plan to try the Strontium Boost again, as it may have been a one time thing. Many folks really improve their Dexa scores with it.
So best wishes to you for a joyful, fulfilling and healthy life!

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Profile picture for brightlight66 @brightlight66

@sam44 Hi there! I'm 67 and have only been on Anastrozole for one year, but I'm over here fighting osteoporosis with everything I can find. I take AlgaeCal Plus. It's sold alone or as a package with a Strontium Boost which I do not take because I tried it and it caused diarrhea. So I only buy AlgaeCal Plus from Amazon, and you're supposed to take 2 capsules twice per day. For all of last year, I only took it ONCE a day and my Dexa numbers improved. So after this last Dexa just a few weeks ago, I ordered more AlgaeCal Plus and now take it twice a day. I support you in not doing drug treatment as my understanding is once you start, you have to stay on them. Best wishes to you, we're all in this fight together. Power on my friend!!!

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@brightlight66 Sorry to hear about your diarrhea . I can imagine it is difficult and inconvenient as I experienced diarrhea several times. ( HUMOR - Sex In The City cable or You Tube- vintage episode - Charlotte ‘s vacation in Mexico with Carrie and their friends. The diarrhea scene will bring a smile to your face)

I feel that meeting with an Endocrinologist MD has been helpful as far as my issues. Additionally, I add a quite a bit of yogurt to my daily diet, as well.

Best,

S.

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Profile picture for brightlight66 @brightlight66

Yes indeed about God, blessings and the natural products! I plan to try the Strontium Boost again, as it may have been a one time thing. Many folks really improve their Dexa scores with it.
So best wishes to you for a joyful, fulfilling and healthy life!

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@brightlight66 suggestion that you really research before doing strontium. I saw posts earlier on this and another site so did quite a bit of research. To me, it appears strontium May increase a dexa score visually only. Strontium being dense, it makes the bones look denser but doesn’t necessarily increase bone strength. I chose to not do it. And if you’ve had previous problems, may want to consider benefits vs problems. Just my take.

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Profile picture for smith777 @smith777

@brightlight66 Sorry to hear about your diarrhea . I can imagine it is difficult and inconvenient as I experienced diarrhea several times. ( HUMOR - Sex In The City cable or You Tube- vintage episode - Charlotte ‘s vacation in Mexico with Carrie and their friends. The diarrhea scene will bring a smile to your face)

I feel that meeting with an Endocrinologist MD has been helpful as far as my issues. Additionally, I add a quite a bit of yogurt to my daily diet, as well.

Best,

S.

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@smith777 Thank you for the humor! I just watched the episode on YouTube and it was hilarious.
Hugs to you!

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Profile picture for mistymar @mistymar

@brightlight66 suggestion that you really research before doing strontium. I saw posts earlier on this and another site so did quite a bit of research. To me, it appears strontium May increase a dexa score visually only. Strontium being dense, it makes the bones look denser but doesn’t necessarily increase bone strength. I chose to not do it. And if you’ve had previous problems, may want to consider benefits vs problems. Just my take.

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@mistymar Yes, I think that was my hesitance about Strontium too. So far, AlgaeCal Plus works just fine for now. Thank you for sharing the information!

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