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Anyone with Plasma Cell Leukemia or family?

Posted by Kris Mikkalson @krismikkalson, Jan 20, 2025

good day,
has anyone here been diagnosed or had family diagnosed with PCL?

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Suzanne | @mother2109 | Aug 21 8:38am

Hi Jim,
My Kappa Light Chain is 1.397 (down from 13k), 3.8 and 380. These numbers are from July 1. Don’t have numbers for August. Are these the numbers you’re asking for?
Have a Blessed day
Michelle

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knikriverstudios | @knikriverstudios | 7 hours ago
In reply to @mother2109 "@knikriverstudios Hi Jim, Good question. I believe he has but I will confirm at my next..." + (show)
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@knikriverstudios

Hi Jim,
Good question. I believe he has but I will confirm at my next appt. He did introduce me to another Oncologist on his team who currently has a pPCL patient - unfortunately she was not very encouraging. My Hematologist is currently treating 3 other patients with pPCL
Met with Hematologist yesterday. If my numbers keep going down she is planing to do 2 transplants within 3 months - better odds of staying in remission. Rough road ahead!
Michelle

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@mother2109

Hi Michelle,
I’m concerned about you .
Wishing you the very best . Jim

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