Has anyone not used medication after First Dexa scan spine -2.8?

Posted by rmasters @rmasters, 6 days ago

I am 57, 5'2" and 110 pounds and have just had my first DEXA scan spinal -2.8 osteoporosis, femoral neck and hips -1.3. I exercise and eat well. I did go through surgical menopuase at 50. I have a blocked LAD artery and use injections of repatha for this. I am giving all these details because I really don't want to start any of these medications and wondering if anyone has ignored pressure from doctors, all of mine are encouraging Reclast. I am scared and tired of looking at all the pros and cons of everything. thank you in advance

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Profile picture for rose140 @rose140

I hope the weight training works for me. Too late for HRT

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@rose140 I started HRT at 64.

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Profile picture for dvargo @dvargo

@osteopatient2026 In 1 year I went from 2.9 to 2.4 spine. I contribute it to HRT and heavy weight training.

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@dvargo
Thank you very much…good to know…
if I was in that range I think I would try it too.❤️

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Profile picture for dvargo @dvargo

Yes, no drugs, score -2.4 spine.

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@dvargo I bought it but because it has a lot of iron in it unless you are deficient in iron from a test; don't think its good supplement.

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Profile picture for gravity3 @gravity3

@wiseage

May I ask what your dexa scores are?

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@gravity3
Hi, my t-scores were: -2.2 on lumbar spine; -2.9 right femoral neck; and -2.8 on left femoral neck.

I also would strongly recommend getting a REMS scan, as the dexa has many limitations and REMS provides additional info. On my REMS the 5 year risk of hip fracture risk was 1.5% to 3.0% .

I also have a vibrating plate and hired a senior fitness (meaning he works with seniors) trainer.

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Profile picture for wiseage @wiseage

@gravity3
Hi, my t-scores were: -2.2 on lumbar spine; -2.9 right femoral neck; and -2.8 on left femoral neck.

I also would strongly recommend getting a REMS scan, as the dexa has many limitations and REMS provides additional info. On my REMS the 5 year risk of hip fracture risk was 1.5% to 3.0% .

I also have a vibrating plate and hired a senior fitness (meaning he works with seniors) trainer.

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@wiseage

I've used a site melioguide.com for support with exercise and other helpful info on Osteoporosis. Also OsteoBoston videos on YouTube.

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Profile picture for gravity3 @gravity3

@fidget53

The majority of us who take osteoporosis medications do not have severe side effects. Most of the folks who are using sites like this are experiencing side effects and some severe.
Unlike myself, most who have very mild side effects or none are are off living their lives. Broken bones are a rare side effect.
My experience over the course of 12 years and taking fosomax, forteo, evenity and Prolia is no noticeable side effects.
Please do your own research into this.
Perhaps your plan will work well for you. Are you going to track you progress with bone markers or with more frequent dexa scans? Have you been tested for causes other than loss of hormones due to menopause? Do you take hrt/bhrt?

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@gravity3
Thanks for your response and to answer your question, I have never taken anything for hormone replacement since I don't even know when I went through menopause since I had no symptoms. I have had no fluctuations in weight, or hot flashes so I had never considered that as something to look at. I am studying new advances in treatments for osteoporosis everyday and making decisions about what will work best for my body. I also have reached out to friends my own age and heard their stories of being on several different medications and bones still breaking after years of taking those medications so my decision is not based on just what I read but factual testimonies from friends and co-workers. I have no spleen and my body reacts very different to supplements, medications including anesthetics. So I am very careful about what I consider . And despite having no spleen which I lost in an accident at 11 yrs old I am rarely sick so the thoughts of making myself sick doesn't make sense when I also know there are other options. One of the things that has greatly affected my decision is that even though I had a DEXA scan 3 years ago it was not recommended by any of the doctors in my clinic. It showed slight density but I have never had a conversation with anyone in the medical field while all along I have been losing bone. WHY was this never mentioned? So my faith in the medical field is tainted by the fact that they could have helped me avoid this condition. And it is the story I am hearing from just about every woman I have spoken to lately. If we had ED or something that insurance companies push to have tested this would not have been the case now. I have to decide what will work best for my body. I am VERY active and have excellent balance so I am counting on keeping that as a reason to make the choices I have made. I have never been on any medications in my entire adult life so the thoughts of 4-5 medications just doesn't add up for me.

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Profile picture for fidget53 @fidget53

@gravity3
Thanks for your response and to answer your question, I have never taken anything for hormone replacement since I don't even know when I went through menopause since I had no symptoms. I have had no fluctuations in weight, or hot flashes so I had never considered that as something to look at. I am studying new advances in treatments for osteoporosis everyday and making decisions about what will work best for my body. I also have reached out to friends my own age and heard their stories of being on several different medications and bones still breaking after years of taking those medications so my decision is not based on just what I read but factual testimonies from friends and co-workers. I have no spleen and my body reacts very different to supplements, medications including anesthetics. So I am very careful about what I consider . And despite having no spleen which I lost in an accident at 11 yrs old I am rarely sick so the thoughts of making myself sick doesn't make sense when I also know there are other options. One of the things that has greatly affected my decision is that even though I had a DEXA scan 3 years ago it was not recommended by any of the doctors in my clinic. It showed slight density but I have never had a conversation with anyone in the medical field while all along I have been losing bone. WHY was this never mentioned? So my faith in the medical field is tainted by the fact that they could have helped me avoid this condition. And it is the story I am hearing from just about every woman I have spoken to lately. If we had ED or something that insurance companies push to have tested this would not have been the case now. I have to decide what will work best for my body. I am VERY active and have excellent balance so I am counting on keeping that as a reason to make the choices I have made. I have never been on any medications in my entire adult life so the thoughts of 4-5 medications just doesn't add up for me.

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@fidget53

Sounds like you have a good grasp on what you need for your body.
I hear you about the sad state of our healthcare system. I sometimes have to calm myself I get so angry about what women have lost and are being denied. However, the power of women is mighty and I love hearing that you also know many women who are pissed.

There is an esteemed woman physician who posts on YouTube. You may know her name already

Dr. Susan Hardwick-Smith

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Profile picture for roseincalifornia @roseincalifornia

@rose140 For many osteoporosis drugs, the majority of people taking them have no side-effects. The people who do have side-effects are the ones who go to forums like these to ask about how to deal with them. If you have an osteoporotic fracture, you will have a lot more "health issues" (like chronic pain, disability) than any osteoporosis drug.

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@roseincalifornia, yes, it's a risk vs benefits equation.
Having fractured, and now being over 4 inches shorter as a result, I don't need any more grief if I can avoid it. I have an appointment--in January!--with another doctor, at Froedtert's Bone Health Clinic. See my endibin September. He's a Prolia fan.

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Profile picture for callmekate @callmekate

@roseincalifornia, yes, it's a risk vs benefits equation.
Having fractured, and now being over 4 inches shorter as a result, I don't need any more grief if I can avoid it. I have an appointment--in January!--with another doctor, at Froedtert's Bone Health Clinic. See my endibin September. He's a Prolia fan.

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@callmekate
Oops, I meant endocrin, of course!

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Profile picture for callmekate @callmekate

@roseincalifornia, yes, it's a risk vs benefits equation.
Having fractured, and now being over 4 inches shorter as a result, I don't need any more grief if I can avoid it. I have an appointment--in January!--with another doctor, at Froedtert's Bone Health Clinic. See my endibin September. He's a Prolia fan.

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@callmekate Glad to hear you are seeking medical treatment. My grandmother had multiple
spinal fractures, but unfortunately there were no medications at that time. You might want to consider Tymlos - that is the best medication for spinal osteoporosis, and side effects are minimal. I am on my 15th month of Tymlos with no side effects. Wishing you the best in your bone journey!

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