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Sjogren’s Syndrome – Introduce yourself and meet others
I have been diagnosed with this and I'm in pain most days and would like to have discussions.
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I have been diagnosed with this and I'm in pain most days and would like to have discussions.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
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@sheritaylor I forgot to mention that another one that helped me prevent the thick mucous and dry mouth was popping in a XyliDENT Xylitol Tablet and letting it dissolve in my mouth before bedtime. They are inexpensive and coming in different flavors.
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1 Reaction@sheritaylor Just store brand
@sheritaylor Good morning. I too have the thick choking stuff. But only at night laying down. So I wonder if it is coming from/draining from my nose? Anyway, I give each nostril a squirt of Otrivin with moisturizers mist spray. no more issues with the stuff.
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1 Reaction@jwpmc rheumatologist
If that doesn’t work
ENT- they biopsy the glands in your mouth
Eye doctor- does two different test on your eyes to check for Sjogren’s.
I tested positive on the last two and later six months later my labs came back positive for Sjogren’s mixed connective tissue disease, lupus and hashimotos.
I was dna tested for lupus since I had so many positive test at once. That came back positive.
@becsbuddy I’ve been diagnosed with Sjogren’s disease about 3 years ago. I also have other autoimmune diseases. Any recommendations of a good Rheumatologist in the Central Florida area?
@colleenyoung I have joint pain in my knees and back. Stiffness when I wake up in the morning. I take low dose Naltrexone. I couldn’t take Plaqunil or Methotrexate. I’m anxiously awaiting the new medication for Sjogrens in Phase IV of a trial.