Prolia side effects: Anyone else on meds for bone health?

Hey buddy, were your bones showing that much deterioration from ADT or was this just precautionary?
These “bone builders” are still to my mind not the best way to go.
I mean, think about it for a second: why would a drug which supposedly strengthens your bones have a SE of spontaneous BONE FRACTURES?? In what galaxy does this make any sense??
I would do a deep dive into Fortibone collagen peptides and others which actually promote the ‘scaffolding’ of osteoporotic bone to allow for mineral deposition. JMHO..,
Phil

@heavyphil yes I will never take another prolia injection..just another example of the doctors/clinics making money off cancer folks..there are other alternatives to prolia..you want to believe they have your best interests in mind..but they dont..they have a clinic full of employees that needa pay check every 2 weeks and if you got good insurance, thenthey put you in the milking stall and try to squeeze every dollar out of you..Urology Austin..the downside of American capitalistic medicine

No experience with Prolia but I was offered Xgeva (same ingredient, different dosage) which I declined after reading the side effects. Then I asked for a dexa scan that showed I did not need Xgeva...yet.... I have had to double check my MO every step of the way for a year, he should have ordered the dexa scan way earlier for a baseline when I started ADT/ARPI and had me check with my dentist beforehand. Without the internet and AI I would be flying blind.
If I do use a bone strengthener in the future I will try what Phil suggested first.
I do understand your comment about the blank look on the Drs face, I see it every appt I have...lol.
Thank you for another data point in this adventure called prostate cancer, so many pieces of a puzzle to put together. Seems I am always waiting for the next thing to happen and for a decision that has to be made. It is exhausting....

Here is an interesting number: Xgeva injection can cost between 3500 and 4500 dollars, each.
Cancer is a business, each patient represents 10s of thousands of dollars. When they deliver my Nubeqa, on the top of the receipt it is listed at : 21,000 dollars for a 1 month supply. WTF? That is 175 dollars PER pill.... I take 4 pills a day. Have to say I dont think Im worth that kind of money.....especially in my weaken state...lol.
ADT. ARPI. Chemo. Radiation. Surgery. Tests. Scans. MRIs. the list is long, life is short, time to walk the dogs.

@stage4lovolmetpc yea..its all big $$$$..and of course we all want to believe our docs are thinking of us and what is best but deep down I think some are thinking of how they gonna pay for their lake house, maeserati, side girl condo..etc...oh look here comes another desperate PC victim with great insurance..lets take him and his insurance to the limit !

@stage4lovolmetpc With the discounts the insurance company gets it is only $100-$125 per pill.
Almost all bone medication works by inhibiting the action of osteoclasts. These remove old bone so this results in the bones becoming fossilized. Therefore, they are more brittle and more likely to fracture. This is slightly better than the osteoporosis hollowed out bones but may not be better than osteopenia. Impact exercise combined with calcium supplements are better for prevention.

@xahnegrey40 Man, I know…I am sometimes reluctant to mention a symptom I’m having for fear that I will enter the “Roach Motel” of medicine…you check in…but bounce from one specialist/dept. to the next…and never check out.
It seems like America has become totally obsessed with the concept of the ‘revenue stream’ and medical corps want to - as you perfectly describe - milk you for all you’re worth; provided, of course, you have Medicare or good insurance.
If not, everything is Jim Dandy, no problem and don’t call us ever again!👋
Phil

I know, I was reading some articles about bone building meds and am not impressed at all. It seems that Fosamax is the longest in use and has lesser degree of SA. BUT, I am thinking that the safest route would be an estrogen patch or Evista - it could possibly have 2 benefits at once : ADT effect AND helping with bones and perhaps lessening ADT other effects for patients that have them.
Just a thought ...
We will ask about estro patch at the next app. with MO. Not as a replacement to ADT but as "supplement" - well, you can imagine THOSE blank looks that will follow those questions LMAO 🤪

@stage4lovolmetpc
I’m a little puzzled here I’ve been getting Nubeqa For three years now and it’s $12,600 Lately it was a little over $13,000 at one point early on. What you are quoting is way over that.

When I checked the web, it says $16,000-$19,000 without insurance.

Where are you at that you’re seeing $21,000?

Hello Jeff! I am in upstate NY and have traditional Medicare with a plan G+ supplement and a Part D plan.
I am looking at the receipt for the drugs I received August 10th right now:
For Nubeqa the Rx price is $21,141.12.
For Orgovyx the Rx price is $3983.32.
I dont pay that, I satisfied my 2100 dollar plan D deductable Jan of 2026, just like you did.
I guess that would be the cash price for the drugs. I also guess that Medicare has a contract with the Part D company so they dont pay that inflated price either.
Your web check highest number was 19,000. My actual number, rounded down, is 21,000. Pretty close really, I mean whats 2 grand amongst friends? Lol...... lets face it, both numbers are way too large.
Regardless, the point being, someone is making alot of money on prostate cancer. Hope this clears up your puzzlement, I am just sharing what the specialty pharmacy sends me every month. What hurts even worse is these drugs make me feel like Im 90 years old....lol...Thanks for the query Jeff, and thanks for all you do here.