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Living with Early Dementia or Mild Cognitive Impairment - Meet Others
As promised, Mayo Clinic Connect now has a group dedicated to living with Early Dementia and Mild Cognitive Impairment (MCI) support group. Follow the group to get notifications when new posts are made.
This is a welcoming, safe place where you can meet people living with early dementia or MCI, or who are wondering about these conditions or undergoing testing. Let's learn from each other and share stories about living well with these conditions, interacting with others who do not have these diagnoses, and offering tips.
Looking forward to welcoming you and introducing you to other members. Feel free to browse the topics in the Early Dementia and Mild Cognitive Impairment (MCI) group or start a new one.
Let's chat. Why not start by introducing yourself?
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I should have mentioned that my PET scan showed Amiloid plaque at 60. I'm caught between a rock and a hard place, so to speak, as healthcare in Las Vegas is terrible. Getting appointments with specialists can take months! I've traveled back to NYC, where I lived, to get major surgeries and medical advice at NYU Langone hospital, but now it's become to expensive to stay and travel back and forth. I was able to get an appointment with a PA at NYU in Las Vegas but I'm not sure that's a good choice for a second opinion
@SusanEllen66 Thank You @SusanEllen66 for clarifying the difference, that was on my definition list to study this week. My Mom at 83 has some dementia, problems with High blood sugar, kidney disease 🦠 and Lewy Body Disease. So on a rough day it’s hard to tell what’s going on & how to relieve it. Any thoughts? 👍
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3 Reactions@jetrob, welcome to this support group for people living with cognitive impairment. You may be interested in this related discussion:
- I have MCI, significant amyloid plaque. How early to begin infusions?https://connect.mayoclinic.org/discussion/how-early-to-begin-infusions/
@SusanEllen66, you're right. Here's an article written by Mayo experts that underlines your statement that MCI and dementia are two distinct umbrella terms for different types of cognitive changes.
- What’s the Difference Between Mild Cognitive Impairment (MCI) and Dementia? https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/whats-the-difference-between-mild-cognitive-impairment-mci-and-dementia/
For everyone, see some additional helpful articles about MCI here:
- Mild Cognitive Impairment: Where to Start Reading https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/mild-cognitive-impairment-practical-tips/
PS: For anyone caring for someone diagnosed with MCI or any type of dementia, I invite you to join the discussions and connect with other caregivers here:
- Caregivers: Dementia Support Group https://connect.mayoclinic.org/group/caregivers-dementia/