Tonight, I'm afraid to go to sleep. I've been waking up with a panic attack, feeling smothered, like death is imminent. Peripheral neuropathy pain in my feet keeps waking me up. I have a BIPAP, using nasal pillows, which I am liking after more than 15 years with a full face mask, but I wake up with my mouth so dry I can't swallow. I usually get back to sleep after an hour or so, out of sheer exhaustion. I think I might be getting the flu or something, with aching, diarrhea and no energy. Or it could be depression. I have a therapy appointment today. Well, back to the bathroom, and maybe then another stretch of sleep.
@lknightb I agree, exercise does help. For me, not only does it help with getting to sleep, but it does energize me for the rest of the day, so I really try hard to get out early and do it. Early to me is getting to my health club by 9:00 for water aerobics.
JK
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
@101082101082 - I've learned a lot over the past year about my peripheral neuropathy, much from Mayo Connect. I'm glad you've joined us, and continue to learn more about what's going on in your body, as well as receive the support of others who understand.
Tonight, I'm afraid to go to sleep. I've been waking up with a panic attack, feeling smothered, like death is imminent. Peripheral neuropathy pain in my feet keeps waking me up. I have a BIPAP, using nasal pillows, which I am liking after more than 15 years with a full face mask, but I wake up with my mouth so dry I can't swallow. I usually get back to sleep after an hour or so, out of sheer exhaustion. I think I might be getting the flu or something, with aching, diarrhea and no energy. Or it could be depression. I have a therapy appointment today. Well, back to the bathroom, and maybe then another stretch of sleep.
@101082101082 - Kristina, I'm happy to be seeing commercials on TV about sleep apnea, and the health risks of untreated apnea. I hadn't realized how many problems result before I had my first sleep study years ago.
I know that it's supposed to be a no no to use a screen within an hour of sleep time. But here I am doing the forbidden.
Oh well. I don't often have any trouble going to sleep. .
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
@jimhd so is tolterodine a generic of myrbetric? If so I am surprised, I didn’t think that myrbetric had been around long enough for generics to be available. If you are finding that it does help I think I will try to get a prescription for it again. Did you get the Rx from your PCP or did you have to go to a specialist? I had been on vesicare for a while but that was eliminated when I started having episodes if confusion which of course were HE.
JK
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
JK @contentandwell - I believe that Tolterodine is the generic for Detrol, which is a twin sister of Myrbetric. I was prescribed it by a urologist, but I'm sure a pcp could prescribe it. The pharmacist was a big help finding a cheaper alternative.
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
@jimhd thanks Jim, I plan to run this by my transplant team and assuming they have no objections I will try to get a script from my PCP or Gyno. My PCP will,probably not want to prescribe it, he is a pain when it comes to prescriptions.
JK
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
JK, it would be strange if your pcp knows your symptoms, and wouldn't prescribe something that almost certainly would treat it. I don't think a gynecologist would have any hesitation in prescribing it.
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
@jimhd Jim, my PCP is very conservative, to an extreme. I have spoken to my gyno about my problem and I too would be surprised if he would not prescribe one of these medications.
JK
Connect
Connect
Like
Helpful
Hug
@lknightb I agree, exercise does help. For me, not only does it help with getting to sleep, but it does energize me for the rest of the day, so I really try hard to get out early and do it. Early to me is getting to my health club by 9:00 for water aerobics.
JK
@101082101082 - I've learned a lot over the past year about my peripheral neuropathy, much from Mayo Connect. I'm glad you've joined us, and continue to learn more about what's going on in your body, as well as receive the support of others who understand.
Jim
-
Like -
Helpful -
Hug
2 Reactions@101082101082 - Kristina, I'm happy to be seeing commercials on TV about sleep apnea, and the health risks of untreated apnea. I hadn't realized how many problems result before I had my first sleep study years ago.
I know that it's supposed to be a no no to use a screen within an hour of sleep time. But here I am doing the forbidden.
Oh well. I don't often have any trouble going to sleep. .
Jim
@contentandwell - jk - I take a variation called tolterodine, as Myrbetric is indeed expensive.
Jim
-
Like -
Helpful -
Hug
1 Reaction@jimhd so is tolterodine a generic of myrbetric? If so I am surprised, I didn’t think that myrbetric had been around long enough for generics to be available. If you are finding that it does help I think I will try to get a prescription for it again. Did you get the Rx from your PCP or did you have to go to a specialist? I had been on vesicare for a while but that was eliminated when I started having episodes if confusion which of course were HE.
JK
JK @contentandwell - I believe that Tolterodine is the generic for Detrol, which is a twin sister of Myrbetric. I was prescribed it by a urologist, but I'm sure a pcp could prescribe it. The pharmacist was a big help finding a cheaper alternative.
I hope it will help you as it has me.
Jim
-
Like -
Helpful -
Hug
1 ReactionThanks for another medication to see if it works with me. Never took either of those that I know of.
Appreciate you following up. Kristina
-
Like -
Helpful -
Hug
2 Reactions@jimhd thanks Jim, I plan to run this by my transplant team and assuming they have no objections I will try to get a script from my PCP or Gyno. My PCP will,probably not want to prescribe it, he is a pain when it comes to prescriptions.
JK
@contentandwell
JK, it would be strange if your pcp knows your symptoms, and wouldn't prescribe something that almost certainly would treat it. I don't think a gynecologist would have any hesitation in prescribing it.
I hope it helps you.
Jim
-
Like -
Helpful -
Hug
1 Reaction@jimhd Jim, my PCP is very conservative, to an extreme. I have spoken to my gyno about my problem and I too would be surprised if he would not prescribe one of these medications.
JK