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Living with Prostate Cancer: Meet others & introduce yourself
Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.
Follow the group. Browse the topics or start a new one.
Let's start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?
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I have a Gleason score 3+4=7 75 years old. MRI on spot as mentioned about and a small spot 3+3=6. I am scheduled for cryotherapy only on the 3+4=7 spot. Dr said we will monitor the other spot.
I chose cryotherapy because les evasive than radiation and faster recovery. Also leaves me with more options in the future. Looking to hear from anyone that has experience with cryotherapy.
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2 Reactions@jap57 my husband has been on a couple different HDT medications. Restarted Lupron and has continued therapy for the last four years as well, will stay on it until insurance no longer covers it. My question is, how often are your bone scans and MRI’s scheduled, and have you experienced bone issues. The side effects of HDT are horrible for my husband.
@looloo2
Hi doctor has me do bone scans and CT’s every six months. That’s as long as my PSA stays undetectable. We’re to start rise then I would probably get a PSMA PET scan pretty soon.
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1 Reaction@jeffmarc thanks for responding. My husband diagnosed 10 years ago stage 4 Gleason score 9 metastatic. Proton focal radiation twice. Recurrence after 2 years post discontinuing Lupron. PET scans every 6 mos. They were every 3 mos., but PSA undetectable and insurance won’t cover every 3. Bone scan only every two years. Journey has been rough. Hope the best for you.
@looloo2
Bone density scans are what they give you every two years.
The bone scan for metastasis you can get more often.
I hope your husband‘s PSA stays low.
@jeffmarc thanks. PSA remains undetectable. PET and bone density scan coming up this month. Oncologist said PET would detect bone mets.
@looloo2
The pet scan is much better for finding bone mats than the bone scan.
Good to hear they’re doing a DEXA scan too.