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Vulvar Cancer: Anyone else?

Posted by ali1974 @ali1974, Nov 12, 2020

Hello:
I have posted on other discussion group about my struggle with my health, previous cancer stories and concerns for my genetic history. I can’t seem to get a break. I just had a biopsy today to rule out vulvar cancer. I honestly didn’t even know there was such a thing. Has anyone been diagnosed with this and is it more common than what I have been reading?
I am BRCA2 and MSH6 positive. 2 time breast cancer and ovarian cancer survivor I have lived a drug and alcohol free life it just doesn’t end!

Alice

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

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teedee66 | @teedee66 | 10 hours ago
In reply to @kate14 "@teedee66 I was diagnosed early April. Had surgery in June. Right radical vulvectomy, left wide local..." + (show)
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@teedee66 I was diagnosed early April. Had surgery in June. Right radical vulvectomy, left wide local excision of the vulva, and partial bilateral vaginectomy. Many biopsies under anesthesia and two weeks later the "big one". I feel I have a great surgeon. Young and conservative. May need more treatment later because a little cancer remains. She wanted to preserve nodes and urethra. I'm older and looked at quality of life issues.

It's painful and a challenge to heal. Tear, infection. Lack of emotional support. To whom does one talk about vulvar cancer?

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@kate14 Sorry to learn of your situation. I’m in therapy currently. It helps to talk about my frustration and being unlucky enough to have this horrible health challenge. I also discuss with a longtime best friend. She’s pretty good at listening and understanding my frustrations. Hope you find the right outlet.

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | 6 hours ago
In reply to @teedee66 "@kate14 Sorry to learn of your situation. I’m in therapy currently. It helps to talk about..." + (show)
Profile picture for teedee66 @teedee66

@kate14 Sorry to learn of your situation. I’m in therapy currently. It helps to talk about my frustration and being unlucky enough to have this horrible health challenge. I also discuss with a longtime best friend. She’s pretty good at listening and understanding my frustrations. Hope you find the right outlet.

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@teedee66 I'm glad to know you've found a mental health therapist that you connect with. May I ask how you located your therapist? I'm asking because this is a common question - how do I find a mental health therapist? - in our Gynecologic Cancers Support Group.

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teedee66 | @teedee66 | 2 hours ago

I did mine through EAP. So I received 8 free sessions. I’m scheduled for this evening and have one more in September. I did request a female with late afternoon and evening hours.

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