Burning mouth syndrome

Posted by honduranexpat @honduranexpat, Jan 31 5:15pm

I was diagnosed with Burning mouth syndrome 4 years ago. It has progressively become worse. I have been given so many different medicines that I can hardly count them and none of them are effective. I'm in counseling now, read all I can about upcoming research. I'm just looking for someone to talk to about it

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2thfairy | @2thfairy | Aug 17 10:39am

Yes, Prednisone can be bad for long term. My prescription was
For 5 days only.

trishblack | @trishblack | Aug 21 7:43am

In reply to @2thfairy "Yes, Prednisone can be bad for long term. My prescription was For 5 days only." + (show)

Is it still helping? I so wanna try it if it helps.

pag1949 | @pag1949 | Aug 27 6:53am

My ENT suspects that I have Burning Mouth Syndrome. However, he said he doesn’t deal with diseases of the mouth. So, he is referring me to another ENT who deals with mouth diseases. However, I cannot get an appointment until February 2027. Meanwhile, I have been suffering for 4 weeks and am concerned that I have to wait so long to get relief. Every toothpaste hurts. Food hurts. Looking for ideas on how to survive until February.
I have a follow-up with my Rheumatologist in a couple weeks to see if I am in remission from my auto immune disease Giant Cell Artiritis. I am hoping he by chance might be able to shed some light on this and to see if it is perhaps caused by my autoimmune condition. Any ideas?

suzbuck11 | @suzbuck11 | Sep 25 10:08am

Does anyone else feel like the burning mouth extends “behind” your nose as well??

suzbuck11 | @suzbuck11 | Sep 25 10:08am

In reply to @pag1949 "My ENT suspects that I have Burning Mouth Syndrome. However, he said he doesn’t deal with..." + (show)

@pag1949
Try getting an appointment with a neurologist

healthydeb | @healthydeb | Sep 26 7:14am

In reply to @pag1949 "My ENT suspects that I have Burning Mouth Syndrome. However, he said he doesn’t deal with..." + (show)

@pag1949 I am familiar with this type of mouth sensitivity. Ask your ENT to prescribe Triple Mouthwash. It contains Benadryl, lidocaine and a steroid. It might help. I recently ordered Dr. Bob toothpaste from Amazon. No flavor or additives but does have fluoride. Avoid spicy foods which I am sure you already do! Over time my sensitivity has decreased so there is hope. Be sure to look into your mouth weekly for any white patches that could signal an infection. I hope you can get some relief.

2thfairy | @2thfairy | Sep 27 2:26pm

In reply to @trishblack "Is it still helping? I so wanna try it if it helps." + (show)

@trishblack
Yes! It hasn’t returned AT ALL, after having had it for over a year! My dermatologist prescribed it.
I hope you are relieved soon.

tatiana1971 | @tatiana1971 | Sep 29 1:27am

In reply to @2thfairy "@trishblack Yes! It hasn’t returned AT ALL, after having had it for over a year! My..." + (show)

@2thfairy Hi, may I ask how long did you take it for? / prendisone/
Did you get some supplements along with it?
I was prescribed Alventa/ antidepressant/ but Im a bit hesitant:(
Thanks for your help:)
tatiana

2thfairy | @2thfairy | Sep 29 10:24am

In reply to @tatiana1971 "@2thfairy Hi, may I ask how long did you take it for? / prendisone/ Did you..." + (show)

@tatiana1971
It was 10mg Prednisone for 5 days. 15 tablets.
Take 5 tabs on day 1,
take 4 tabs on Day2,
3 tabs on day 3,
2 tabs on Day 4,
1 tab on day 5.
It helped quickly and the burning mouth hasn’t returned. My dermatologist prescribed it.