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End of Tymlos treatment
I have been on Tymlos for 18 months, I’m at the end. my dr says I’m on a drug holiday till July 27. I never heard that before, I thought I was to transition to another to bind my gains. I’m afraid. Any feenback?
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@osteopatient2026 A Bone Specialist is an Orthopedic specialist. I went to two.
@alidamc I would see an endocrinologist. Osteoporosis often involves hormones, and the endo is the person to see.
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3 Reactions@alidamc
Not really the first choice but an orthopedist (bone specialist) could be good depending on their experience and maybe if they specialize in osteoporosis but in general njx58 is correct.
@osteopatient2026 I have to go to whomever takes my referrals. The Orthopedic Bone Specialist has treated many people with osteoporosis. I look Physicians up before I go to see what areas they specialize in. I live in a city with a medical school and so many hospitals that an expressway is called “Hospital Curve.”
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2 Reactions@alidamc As many of us have found out, it can be very frustrating finding doctors who truly know what they're doing when it comes to osteoporosis. Many general practitioners prescribe Fosamax because it's the oldest OP drug and that is all they know.
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4 Reactions@njx58 I had a (now deceased) Physician friend who told me about drug company salespeople who would take them out to lavish restaurants, give them other perks to try to get them to prescribe their drugs. I don’t know if it’s still true today, but that’s how my ARPN acted about TYMLOS. She showed me how to do it, by quickly shoving it in to her abdomen. I mean she was PUSHING it on me to the point she was acting like a car sales person. I researched it. At first I wasn’t going to let her prescribe it and frankly I was surprised when my insurance approved it with only a $12 co-pay. After doing more research on YouTube by a Dr. who said that the studies were only conducted on still growing mice for two years and that the side effects would never have been done on growing toddlers, to give an example, I decided that made sense. Of course he was also trying to sell a supplement. But it did make sense. I read many journal articles also. I have been in such excruciating pain for so long because of crushed vertebrae from falling and a broken rib from just turning over trying to stand up, I decided that I really didn’t have anything to lose. I’m 75. Live alone and do not have good enough insurance to go to a nursing facility if I fell and broke my hip. Luckily, an epidural helped with the pain. I was actually considering going on opioids and DEFINITELY did not want to take those.
So, what’s the worst thing that could happen taking TYMLOS? Absolutely nothing.
But I did not appreciate the APRN’s approach.
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1 ReactionSuch a good post! Hope you’re doing well now. I am at the end of my Tymlos treatment and my dexa score for my spine went from -3.4 to -2.1. Osteopenia! It worked on me with no side effects except for swelly belly and fast heart beat that all subsided. It does work. Now I have to think of a relay drug to lock in those gains.