← Return to Why Camzyos instead of surgery?

Discussion
joycehocm avatar

Why Camzyos instead of surgery?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 10 4:25pm | Replies (54)

Comment receiving replies
Profile picture for joycehocm @joycehocm

@joycehocm Hi - Yes, I was tested for amyloidosis at Hopkins before we moved on to treating my HOCM. I have a marker in my blood called an M-spike that is associated with multiple myeloma (correlated, not causative). Hopkins has an entirely different team that treats amyloidosis if it is present. It is pretty rare so, if you can, I would put your mind at ease and don't worry. The heart biopsy is a bit unnerving but there is no pain at all and it is over very quickly. I was very tired afterwards. We don't live in Baltimore so we stayed overnight in a hotel nearby - which was a really good idea. I went to bed and didn't get up until we checked out and drove home to Delaware. FYI - I am not on Camzyos and have not had a Septal Ablation. My Hopkins cardiologist put me on verapamil and jardiance and I have felt really well since then! So take it one step at a time. Hopkins really knows what it is doing and they have been terrific with me.

Jump to this post


Replies to "@joycehocm Hi - Yes, I was tested for amyloidosis at Hopkins before we moved on to..."

@joycehocm Thank you for the update! Yes, you are in good hands at Hopkins, and I am so very glad you are getting care there. The best parts must be peace of mind and "feeling really well since." Please do write more updates in the future because they help others realize they are not alone. All of these smart and experienced doctors are helping us to live our best lives. (HUGS) Thank you, again.