End of Tymlos treatment

Posted by idapa @idapa, 2 days ago

I have been on Tymlos for 18 months, I’m at the end. my dr says I’m on a drug holiday till July 27. I never heard that before, I thought I was to transition to another to bind my gains. I’m afraid. Any feenback?

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Profile picture for idapa @idapa

Thank you to all that replied. I am really worried I am going to lose everything. I am seeking a second opinion although I really like this dr, but have real concerns. I was worried sick going in to appt for decision on a rely drug, and when he said drug holiday I was shocked ! My spine dexa went from -3.3 to -2.1. Incredible gains! I was on Tymlos for 2 yrs.

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@idapa Drug holiday? No. That is wrong. You must follow up with something else. This doctor doesn't seem to know anything.

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My 90 year old mother took boniva for many years with no noticeable side effects . I thought it had been taken off the market and can
Only get a generic of it ?
But I just heard of a friend my age (65) who was just prescribed Boniva?

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Profile picture for 2024tymloshelp @2024tymloshelp

My 90 year old mother took boniva for many years with no noticeable side effects . I thought it had been taken off the market and can
Only get a generic of it ?
But I just heard of a friend my age (65) who was just prescribed Boniva?

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@2024tymloshelp
There are some kidney risk issues so it is not for everyone…she’s (my friend) a pretty experienced surgical nurse who also taught nursing for the last 20 years. She said it was her choice. Her tscores are not as bad as mine so things are different for her.

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Profile picture for idapa @idapa

Thank you to all that replied. I am really worried I am going to lose everything. I am seeking a second opinion although I really like this dr, but have real concerns. I was worried sick going in to appt for decision on a rely drug, and when he said drug holiday I was shocked ! My spine dexa went from -3.3 to -2.1. Incredible gains! I was on Tymlos for 2 yrs.

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@idapa "Transitioning to a bisphosphonate (or another antiresorptive medication) immediately after completing a course of Tymlos (abaloparatide) is a critical standard of care in osteoporosis management."

Google about it. You will lose out of your gains if you do not transition to another med very soon.

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Profile picture for roseincalifornia @roseincalifornia

@idapa "Transitioning to a bisphosphonate (or another antiresorptive medication) immediately after completing a course of Tymlos (abaloparatide) is a critical standard of care in osteoporosis management."

Google about it. You will lose out of your gains if you do not transition to another med very soon.

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@roseincalifornia thank you. I’m going to another rheumatologist for a second opinion. I am worried about it

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Profile picture for CathyF31 @cathyf31

@osteopatient2026 I would definitely question that further, as Tymlos followed by a bisphosphonate or sometimes Evenity for a year first, in order to lock in the games. The only question is do you wait one week or one month, but you don't just walk away from it or you'll lose gains. If doctor won't elaborate on your specifics, I would try to get a second opinion asap.

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@cathyf31
Not a “holiday” a pause…a few days to a week. 😉

“Transitioning to Maintenance Treatment”
After completing your TYMLOS treatment, your doctor/ provider will suggest a follow-up maintenance osteoporosis treatment plan.
The specific waiting period before starting a maintenance drug can vary based on individual health needs and the doctor's recommendations.

Factors Influencing Timing

Bone Density Assessment: Your doctor may recommend a bone density test to evaluate your condition before starting maintenance therapy.
Health Status: Any changes in your health or new medical conditions may affect the timing of the transition.

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Profile picture for idapa @idapa

@roseincalifornia thank you. I’m going to another rheumatologist for a second opinion. I am worried about it

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@idapa If there is a long wait getting in to see a rheumatologist, try an endocrinologist, or even an obgyn (women's health doctor). Good luck to you!

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Thank you! Appreciate your feedback

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Profile picture for idapa @idapa

@roseincalifornia thank you. I’m going to another rheumatologist for a second opinion. I am worried about it

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@idapa I go to a Bone Specialist. I haven’t heard anything about going to a rheumatologist for osteoporosis for medication.

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