Has anyone tried anagrelide? If so what was your thoughts on this med?

Posted by dwilson072516 @dwilson072516, 3 hours ago

My husband did not respond well to hydroxyurea or Jakifi. He is about to start anagrelide once he gets the prescription. He has Jak2 and nothing has helped his numbers, right now he is about to hit 7 million. Which seems to be on a steady increase. Anyone try anagrelide? If so, what are your thoughts and how did you do on it?

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preacherswife1977 | @preacherswife1977 | 2 hours ago

I tried it but could not take it. It caused palpitations

nancyra | @nancyra | 2 hours ago

I was on it for 5 years and did quite well with little side effects. So if you can tolerate it I found much less side effects than HU
I recently came off it as I started having afib events. My hem does not think it was from the Anagrelide but when taking a blood thinner you absolutely cannot stay on it. Serious interactions

dwilson072516 | @dwilson072516 | 1 hour ago

In reply to @preacherswife1977 "I tried it but could not take it. It caused palpitations" + (show)

@preacherswife1977 thank you for the reply

dwilson072516 | @dwilson072516 | 1 hour ago

In reply to @nancyra "I was on it for 5 years and did quite well with little side effects. So..." + (show)

@nancyra thank you for the reply

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