Tymlos - can you stop it suddenly?
I had huge improvement on DEXA scan after 9 months of Tymlos. I was thinking about quitting it because of side effects but the improvment made me think it was worth continuing. The symptoms of hypercalcimia were getting very uncomfortable.
I saw the endocrinologist, who told me to talk to my doc about taking a different blood pressure medication to reduce the hypercalcemia - but I can't get in for an enitre month. So I stopped taking Tymlos 5 days ago mostly due to exreme leg cramps but I feel SO.MUCH.BETTER that I"m thinking I should just quit.
However, my physical and mental energy levels are now so low that I can barely function. I would think that I am depressed, but it's not like I don't care about anything - it's that there's nothing worth caring about. So this isn't good. But what do I do? I read that stopping Tymlos without a back up plan is bad for you, my physical body feels tons better, and some aspect of my mental body is draining faster than a cell phone searching for a signal.
Both the endocrinologist and my primary care doc are unavailable, and there's not point in going to an urgent care because they'll just tell me make an appt with primary care. But something is really not right. Any thoughts on how to move forward?
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@osteopatient2026 Right. As I understand it, Reclast is for maintaining the improvement.
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1 Reaction@osteopatient2026 Good luck. I was told to avoid calcium supplements while on Tymlos. Although there are issues with info from online sites and even the Tymlos site, I did a lot of reading on corporate and medical sites to get an idea of what the professional community is thinking. This helped me frame questions for my doc.
@rosemaryrocks
So wonderful to hear! Reclast is going to be my path forward as well after Tymlos. I saved the recommendations for infusion from this site and intend to present it to my doc as well. I am so pleased that you had no issues with the Reclast!
@rosemaryrocks
This is helpful…I was wondering why my gums (mucosal tissues) were blisteringly…and the cramps. If there was agony relationship?