Fluoroquinolone toxicity

Yes instant onset 3rd day of cipro .axonal sensory motor..small fiber and autonomic 8 yrs ago ..healthy n normal to an invalid at 47 .

Speaking from my own experience of levaquin toxicity, getting doctors and neurologists to even acknowledge the possibility is useless. I finally found an MD in Palmyra PA who is family practice and alternative medicine. He is very knowledgeable about the damage from floroquinolones. He diagnosed medication toxicity and Put me on a regimen of supplements. Nothing worked immediately but I have for the most part recovered after 3 years. I still get neuropathy flares and some shoulder pain here and there but compared to where I was I’ll take it. The first year was the hardest and scariest. I’d recommend finding an alternative medicine dr to advise on supplements, eat clean, and as odd as it sounds meditate every day for at least 10 minutes. The calming effect helps some of the physical stuff at least for me. Neuropathy and tinnitus mostly. I think time is the tincture with this. At the 1 year mark I felt that life as I had known it was over. But now 3 yrs post floroquinolone I’d say I’m 90% recovered. I still take a few supplements daily and watch what I eat but overall life is back to normal.

I am currently poisoned 6 years from cipro. Additionally, I was poisoned in 1990 and sick for 9 years. For whatever miracle, after 9 years it mostly went away. During that time, I went to Mayo clinic. They didn't have a clue and how to diagnose me. And it's mind-blowing that 31 years later they still can't diagnose it. It's really sad. And Mayo clinic is not alone. Virtually every doctor I see doesn't believe me and or knows nothing about the florouquinolone poisoning

I just spent an hour writing about my 3 1/2 year experience nightmare of Levaquin. From perfectly healthy to the extreme fit physically fit high-level professional medical speech, pathologist for 30 years, working seven days happily balanced life, married with dogs. After trying to get rid of a UTI. I was given Levaquin after day for my life ended. Neuropathy following mental changes visual changes, and all the symptoms of Sjogren’s suddenly came on I also experienced severe anhidrosis. I do not sweat. I stop driving I stopped working I stopped living I do not even go out. My wife has taken care of me for the last 3 1/2 years since this happened I had to quit my fantastic profession, which I enjoyed so much. Our life ended. After seeing several doctors and 3 1/2 years worth of searching. Mostly ignored and neglected, and frankly did not believe me. Put me in the mental category started me on antidepressant antipsychotic drugs. It destroyed my life Basically bedbound. I wrote all the details I could think of and it never excepted my comment. It’s just circled.

@rubethedogman i was prescribed levaquin in '13 2 years after grad school (architecture). i had an extreme allergic reaction.

i've experienced gaslighting by the legal and medical establishment ever since. my sense is this is not a coincidence. there is a lot of money exchanging hands.

how can doctors not know about this?!

i have been standing in front of them for 13 years, telling them it made me sick. they still don't acknowledge my words when i talk about it. radio silence. always trying to diagnose me. the nerve damage hasn't shown up in tests. i had a skin biopsy for sfn last week. i'm doubtful i'll get validation at this point. i'm completely exhausted from the experience. hired a disability lawyer because i can't work. it's devastating.

while the brand name is no longer made, the generic drug manufacturer's are eluding accountability while making profit. scotus was bought out, too.

i'm still sick. i was never able to practice. i was severely traumatized by this drug. i never recovered physically, and my symptoms worsened over time.

I was given levafloxacin in December, 2023, and had bilateral Achilles tendon ruptures. Not just ruptures - it destroyed the tissue in the tendons, so I had to have tendon replacement surgery. I'm still having a hard time, with pain and tightness in my legs. I also have CIDP/axonal polyneuropathy, so it's hard to pinpoint what causes the pain. I'm still doing PT, but not enough. I'm fortunate that fluoroquinolone didn't do more damage than it did.

I was prescribed ciprofloxacin for UTI by a doctor in June 2017 and got neuropathy overnight.
Unfortunately I didn't know the culprit at the time. Had I known I would have atleast discontinued the course in the middle. Although I was diagnosed one year later for small fiber neuropathy with no reason identified by Mayo Clinic, I am positive that Cipro is the real culprit of my suffering.

@nukhan

I was diagnosed with small fiber neuropathy. My records say idiopathic but the only risk factor i had was taking flouroquinolones. They thought I had tarsal tunnel bilaterally so I had surgery on one foot and it didn't help. I have had numbness and pain for 8 years. It has been debilitating. Sometimes I feel numbness and coldness in a stocking pattern on my lower extremities. I have orthotics to walk but even walking proves difficult. I tried to get an appointment at Mayo when this first happened and the nurse was rude with me and said they don't see patients like me. The pain when walking and the muscle cramps in my calves at night has become all consuming. There has been no relief and it has become progressively worse.