New Daily Persistent Headache

Posted by lyndsieguzek @lyndsieguzek, Nov 11, 2025

I was just recently diagnosed with probable ndph, tension type. I have constant pressure that feels as though I have something inside my brain pressing outward. I’m curious if anyone else has had this. I’ve had a chronic headache (which feels more like brain pressure) since September. It sometimes feels sinus like, sometimes behind my left eye, and sometimes just all over (like my entire brain)

CT Was clear, they ordered MRI, MRA and MRV. Bloodwork was completely normal. No signs of infections.

I was prescribed a 5 day, “bridge treatment” that is a steroid. If it is unsuccessful I will need to take a daily medication for prevention.

What helps you? Heat? Ice? I need relief. I’ve tried chiropractors, dry needling, migraine medications..

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for mikayla @mikaylar

YES it is. In 2 weeks I will have glue patch for my spine for a leak. Have they tested you for that? Where do you live?

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@mikaylar I am in Massachusetts and pushed for years for a lumbar puncture and no doctor I saw would order one for me. Is that how your leak was detected? Is that the cause of your headache?

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Profile picture for saravenrt @saravenrt

@mikaylar I am in Massachusetts and pushed for years for a lumbar puncture and no doctor I saw would order one for me. Is that how your leak was detected? Is that the cause of your headache?

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Dr, Khan at Johns Hopkins will do it. He did 2 of mine in Philly when he was here for 2 yrs

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Topiramate. Try it. It works for headaches. Takes a couple of weeks tibstart working but it does work for me!

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Profile picture for tova @tova

Topiramate. Try it. It works for headaches. Takes a couple of weeks tibstart working but it does work for me!

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@tova If that doesn't work ask for ubrelvy. It stopped my headaches in their tracks. My insurance will not cover it but Abbvie provides it to me. It has changed my life.
Everyone is different. My head sometimes felt like it was a basketball with too much air in it and that was very painful. I had every scan and test available and they all came back clear. I had an AVM removed from my brain in 1973 and have had migraines and headaches ever since. I have tried every medication out there, I would stay far, far away frm Baclofen(I ended up hospitalized for 19 days). It is a very strong muscle relaxer which made my legs turn to jelly. It does nothing for headaches. Good luck and I hope you find something that relieves your pain.

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Profile picture for mslee56 @mslee56

@tova If that doesn't work ask for ubrelvy. It stopped my headaches in their tracks. My insurance will not cover it but Abbvie provides it to me. It has changed my life.
Everyone is different. My head sometimes felt like it was a basketball with too much air in it and that was very painful. I had every scan and test available and they all came back clear. I had an AVM removed from my brain in 1973 and have had migraines and headaches ever since. I have tried every medication out there, I would stay far, far away frm Baclofen(I ended up hospitalized for 19 days). It is a very strong muscle relaxer which made my legs turn to jelly. It does nothing for headaches. Good luck and I hope you find something that relieves your pain.

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@mslee56
Thank you for the heads up on baclofen. And ubrevely by abbvie care. The problemis i have rheumatoid arthritis and im on a drug called zelganx xr by pfizer. So im noy sure if id get help.

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